CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 251 - 275 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56446 PROMIS - Pain Behavior when pain become angry scale

Scale related to the individual feeling as if when he/she was in pain he/she became angry, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C60253 Cardiac MRI thoracic aorta ascending size measurement

Measurement in millimeters of the size of the subject/participant's ascending thoracic aorta, assessed by cardiac MRI.

Exploratory 1.00 2021-03-02 16:12:22.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59298 Child personal physician explain clearly last 6 month frequency scale

Scale for the frequency over the past 6 months that the child's personal physician explained things in a way that was easy to understand

Proposed 1.00 2019-03-29 10:22:22.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C60717 Apheresis product differential value

The value related to differential cells in apheresis product

Exploratory 1.00 2021-05-10 12:12:04.0 Apheresis Sickle Cell Disease Sickle Cell Disease
C58673 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel alone because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C59557 Age pediatric month part value

Value of the month part of the pediatric subject/participant's age

Proposed 1.00 2019-04-11 13:47:49.0 PhenX Toolkit: Pediatric School Performance Sickle Cell Disease Sickle Cell Disease
C56565 PROMIS - Cognitive Function had difficulty multitask scale

Scale related to how often an individual has had difficulty multi-tasking in the past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
C60118 Splenic sequestration episode count

Count of splenic sequestration episodes experienced by the subject/participant.

Core 1.00 2021-01-15 09:51:54.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C59155 Protocol deviation violation corrective action text

Text recording the protocol deviation or violation corrective action that was taken

Proposed 1.00 2019-01-29 16:03:29.0 Protocol Deviation/Violation Form (PDV) - BMTCTN 15070 Sickle Cell Disease Sickle Cell Disease
C60342 Nephrin measurement unit of measure

Unit of measure used for the measurement of nephrin.

Exploratory 1.00 2021-03-15 15:16:36.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C56314 NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:45:09.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C21499 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest response text

Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C59387 Child recover stroke completely indicator

Indicator of whether the respondent's child has recovered completely from his or her stroke

Proposed 1.00 2019-04-02 15:12:55.0 PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C59766 Reach low cupboard difficulty scale

Scale of the difficulty the subject/participant has in reaching into a low cupboard

Supplemental 1.00 2019-06-20 12:32:55.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C55695 PROMIS - Dyspnea Functional limitations walk 1 mile no stop scale

Scale related to an individual being able to walk for at least 1 mile (a little more than 1.5 km) without stopping, as part of the PROMIS Dyspnea Functional Limitations

Supplemental 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C59975 Immunoglobulin M before treatment value

Value of the subject/participant's immunoglobulin M (IgM) measurement prior to any disease treatment.

Supplemental 1.00 2020-09-01 15:47:39.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C58738 Creatinine clearance most recent measurement

Measurement of creatinine clearance from the most recent sample taken from the subject/participant

Proposed 1.00 2018-12-06 12:09:07.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C19247 Subject ID

Subject identification ID

Supplemental 1.00 2014-06-05 13:10:49.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59254 Sleep problem past 7 day grade

Grade of problems with sleep over the past 7 days

Proposed 1.00 2019-03-28 11:00:57.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C58628 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable join friends because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant's health kept him or her from doing what his or her friends wanted to do, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C60099 Hydroxyurea dose postpone indicator

Indicator of whether the administration of the hydroxyurea (HU) dose was postponed.

Core 1.00 2021-01-14 14:32:57.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C58583 Human leukocyte antigen typing allele 1 code

Code for the first allele reported for the specified gene locus using the specified human leukocyte antigen (HLA) typing method.

Proposed 1.00 2018-10-23 12:00:40.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
C56346 NIH Toolbox Cognitive - Picture sequence memory age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:05:50.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59726 Carry 2 bag groceries 100 yard 100 meter difficulty scale

Scale of the difficulty the subject/participant has in carrying 2 bags filled with groceries for a distance of 100 yards / 100 meters

Supplemental 1.00 2019-06-20 10:35:00.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C60656 PROMIS Pediatric Global Health 7plus 2 - fun with friend frequency scale

Scale of the frequency with which the subject/participant has fun with friends, as part of the PROMIS Pediatric Global Health 7+2 questionnaire.

Core 1.00 2021-04-30 13:00:50.0 PROMIS Pediatric Global Health 7+2 Sickle Cell Disease Sickle Cell Disease
Displaying 251 - 275 of 5231