CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60483 Integrating viral vector copy number blood CD3 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD3+ lineage

Supplemental 1.00 2021-04-22 13:25:18.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C20705 Quality of Life - Depression assessment past week scale

The scale which represents how often the participant felt depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C58764 Treatment initiated code

Indicate whether Sildenafil, Bosentan, Oxygen with RBC Transfusions, or another method was used to initiate treatment.

Proposed 1.00 2018-12-10 13:11:24.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C58735 Serum creatinine most recent measurement

Measurement of the most recent serum creatinine evaluation.

Proposed 1.00 2018-12-06 11:59:14.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C54702 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit talk code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and talking, as part of the Epworth Sleepiness Scale (ESS)

Supplemental 1.00 2017-04-10 11:48:33.0 Epworth Sleepiness Scale (ESS) - Adult Version Sickle Cell Disease Sickle Cell Disease
C56460 PROMIS - Pain Behavior when pain use cane for support scale

Scale related to the individual feeling as if when in pain he/she used a cane or something else for support in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C60697 Apheresis device manufacturer model text

The free-text field related to apheresis device manufacturer and model.

Exploratory 1.00 2021-05-10 12:12:04.0 Apheresis Sickle Cell Disease Sickle Cell Disease
C19762 Medical history myopia diagnosis indicator

Indicator of history of myopia

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C58658 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Hip shoulder damage due sickle cell medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C59043 Chronic kidney disease toxicity grade

Grade of chronic kidney disease toxicity exhibited by the patient.

Supplemental 1.00 2019-01-10 12:45:24.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59088 Future research blood sample consent withdrawal code

Code indicating whether or not patient withdrew consent to provide optional blood samples for future research or ancillary studies

Proposed 1.00 2019-01-14 14:21:41.0 Withdrawal of Consent Form (WOC) Sickle Cell Disease Sickle Cell Disease
C59841 Walk over mile health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to walk more than 1 mile / 1.6 kilometer

Supplemental 1.00 2019-06-21 13:53:03.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59968 Platelet count value

Value of the count of platelets in the subject/participant's complete blood cell (CBC) sample.

Supplemental 1.00 2020-09-01 13:36:15.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C20806 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep lightness assessment past week scale

The scale which represents how often the participant's sleep was light in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C58779 Female childbearing potential indicate code

Code indicating whether the subject/participant is a female of childbearing potential.

Proposed 1.00 2018-12-11 10:39:18.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C60188 Platelet count 150K per microliter 50 percent decrease from baseline indicator

Indicator of whether the subject/participant experienced thrombocytopenia (or decrease in platelet count) defined as a platelet count 150,000 per microliter or a 50 percent decrease from baseline.

Supplemental 1.00 2021-02-24 12:26:22.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C54692 PROMIS - Global Health carry out social role scale

Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health

Supplemental 1.00 2017-04-07 15:34:25.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C60395 Laboratory procedure red blood cell count

The red blood cell count.

Exploratory 1.00 2021-04-04 23:41:57.0 Adhesion and Viscosity Sickle Cell Disease Sickle Cell Disease
C58613 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health prevent all activity past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant was prevented from all activity because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58643 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint stiffness daytime scale

Scale for the subject/participant's joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C60080 Warts prominent indicator

Indicator of whether the warts the subject/participant presents with are a prominent clinical feature.

Supplemental 1.00 2020-09-03 15:35:46.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C60292 Echocardiogram septum ventricular thickness measurement

Measurement in millimeters of the thickness of the subject/participant's ventricular septum, assessed by echocardiogram.

Core 1.00 2021-03-03 12:43:25.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C59801 Jump rope 10 minute no stop difficulty scale

Scale of the difficulty the subject/participant has in jumping rope for 10 minutes without stopping

Supplemental 1.00 2019-06-21 11:21:10.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59663 Work quality good as desire scale

Scale of the degree to which the subject/participant thinks the quality of his or her work (including work at home) is as good as he or she desires

Proposed 1.00 2019-06-19 10:55:39.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60212 Medical history psychological mental health condition type

Type of psychological or mental health condition of which the subject/participant has a history.

Core 1.00 2021-02-24 15:52:12.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 5231