CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59563 Residence US years code

Code for the number of years the respondent has lived in the US

Proposed 1.00 2019-04-11 14:23:18.0 PhenX Toolkit: Years Living in the U.S. Sickle Cell Disease Sickle Cell Disease
C56309 NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up raw score

The raw score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:36:24.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59161 Bothersome fatigue seven day average status

Status indicating how much fatigue bothered subject/participant over the past seven days

Proposed 1.00 2019-01-30 17:01:41.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C59393 Child stroke problem strength coordination left side face body code

Code for the score of the respondent's child's problems with strength or coordination of the left side of the face or body as a result of his or her stroke.

Proposed 1.00 2019-04-03 10:28:55.0 PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C56507 PROMIS - Pain Interference pain severe think nothing else scale

Scale related to how often an individual's pain was so severe he/she could think of nothing else in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C20720 Patient-Reported Outcome Measurement Information System (PROMIS) - Stubbornness assessment past week scale

The scale which represents how often the participant was stubborn with others in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger Sickle Cell Disease Sickle Cell Disease
C58804 Red blood cell transfusion most recent date

Date of the subject/participant's most recent RBC (red blood cell) transfusion

Proposed 1.00 2018-12-12 12:34:37.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C60568 Rheumatologic autoimmune prior disorder new instance exacerbation follow drug product infusion indicator

Indicator of whether a prior rheumatologic or other autoimmune disorder presented exacerbation or a new instance following drug product infusion.

Supplemental 1.00 2021-04-23 15:02:28.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59864 Need push self get thing done because fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant needed to push him or herself to get things done because of his or her fatigue

Core 1.00 2019-06-24 13:33:03.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59260 Pain interfere daily activity past 7 day grade

Grade of interference with daily activities due to pain over the past 7 days

Proposed 1.00 2019-03-28 11:19:14.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C19791 Medical history pulmonary antibiotics use frequency

Frequency of antibiotic use

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C56343 NIH Toolbox Cognitive - Picture sequence memory age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:05:50.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56414 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension T score sum value

The sum of the T scores the subject received on the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental 1.00 2017-06-12 11:35:16.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C58726 Hemoglobin SS beta thalassemia zero indicate code

Code indicating whether the subject/participant has hemoglobin SS (HbSS) disease or hemoglobin sickle beta thalassemia (HbSBeta) zero disease.

Proposed 1.00 2018-12-06 11:09:17.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59128 Match score calculated recipient to donor HLA locus DRB1 text

Text field for recording the recipient-to-donor calculated match score for HLA (Human Leukocyte Antigen) locus DRB1.

Proposed 1.00 2019-01-22 11:42:41.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
C55773 Imaging MRI scanner used count

The number of different MRI scanners that were used on the subject.

Supplemental 1.00 2017-05-31 12:11:13.0 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C56467 PROMIS - Pain Behavior when pain drew knees up scale

Scale related to the individual feeling as if when in pain he/she drew his/her knees up in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C20693 Quality of Life - Other people withdrawal assessment past week scale

The scale which represents how often the participant withdrew from other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C60528 Gene editing blood CD14 plus lineage on target indel count

Count of gene-editing on-target indels in the blood CD14+ lineage.

Supplemental 1.00 2021-04-23 11:20:12.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C56447 PROMIS - Pain Behavior when pain clench teeth scale

Scale related to the individual feeling as if when he/she was in pain he/she clenched his/her teeth in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C56390 Conners Continuous Performance Test 3rd Edition (CPT3) - Impulsivity perseveration count

The number of random or anticipatory responses, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Proposed 1.00 2017-06-09 15:39:31.0 Conners Continuous Performance Test 3rd Edition (Conners CPT 3) Sickle Cell Disease Sickle Cell Disease
C60278 Cardiac MRI left anterior descending artery apex segment late gadolinium enhancement status

Status of late gadolinium enhancement (LGE) of the apex segment of the subject/participant's left anterior descending artery (LAD), assessed by cardiac MRI.

Supplemental 1.00 2021-03-02 16:16:42.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C54689 PROMIS - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Supplemental 1.00 2017-04-07 15:34:25.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C60523 Gene editing conversion blood CD14 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD14+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58670 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficult past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had difficulty falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 5231