C59797 |
Climb stair 10 story building no stop difficulty scale |
Scale of the difficulty the subject/participant has in climbing the stairs of a 10 story building without stopping
|
Proposed |
1.00 |
2019-06-21 11:11:50.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59158 |
Difficulty starting things seven days status |
Status indicating whether the participant has had trouble starting things in the past seven (7) days due to being tired
|
Proposed |
1.00 |
2019-01-30 11:47:06.0 |
PROMIS Item Bank v1.0 (PRO) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58909 |
Etretinate therapy chronic GVHD indicate code |
Code indicating whether Etretinate therapy was used to treat chronic GVHD (graft-versus-host disease)
|
Proposed |
1.00 |
2018-12-17 12:03:21.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59044 |
Dialysis receive indicate code |
Code indicating whether the patient received dialysis
|
Proposed |
1.00 |
2019-01-10 12:51:43.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58917 |
Infection related to pneumonia or bronchopneumonia code |
Code indicating whether the patient has evidence of pneumonia or bronchopneumonia related to an infection.
|
Proposed |
1.00 |
2018-12-17 15:39:31.0 |
Infection Form (IFN) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59704 |
Wash back difficulty scale |
Scale of the difficulty the subject/participant has in washing his or her back
|
Proposed |
1.00 |
2019-06-19 14:05:29.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59617 |
Red cell distribution width percent value |
Value indicating the amount of red blood cell variation in volume and size (in percent).
|
Proposed |
1.00 |
2019-04-15 16:35:04.0 |
PhenX Protocol: Complete Blood Count (CBC) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56572 |
PROMIS - Life Satisfaction life great scale |
Scale related to an individual feeling as if his/her life was great in the past 4 weeks, as part of the PROMIS Life Satisfaction
|
Proposed |
1.00 |
2017-06-15 13:16:18.0 |
PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56546 |
PROMIS - Cognitive Function walk in room forgot what to do scale |
Scale related to how often an individual has walked into a room and forgotten what he/she meant to get or do there in the past 7 days, as part of the PROMIS Cognitive Function
|
Proposed |
1.00 |
2017-06-15 10:01:13.0 |
PROMIS Item Bank v2.0 - Cognitive Function |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58779 |
Female childbearing potential indicate code |
Code indicating whether the subject/participant is a female of childbearing potential.
|
Proposed |
1.00 |
2018-12-11 10:39:18.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59274 |
Child health care provider ask best choice care last 6 month indicate code |
Code indicating whether in the last 6 months the child's health care provider(s) asked what the best choice of options was for the child
|
Proposed |
1.00 |
2019-03-28 15:21:15.0 |
PhenX Toolkit: Quality of Care - Children |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20781 |
Quality of Life - Worry assessment past week scale |
The scale which represents how often the participant felt worried in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.
|
Proposed |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58982 |
Granulocyte colony stimulating factor initiate assess period indicate code |
Code indicating whether G-CSF (granulocyte colony stimulating factor) was initiated during the assessment period.
|
Proposed |
1.00 |
2019-01-07 11:50:13.0 |
Hematopoiesis Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20715 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Anger guilt assessment past week scale |
The scale which represents how often the participant felt guilty about his/her anger in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-20 14:40:56.0 |
PROMIS Item Bank v1.1 - Anger |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58653 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59938 |
Feel fatigue past 7 day extent scale |
Scale of the extent over the past 7 days to which the subject/participant felt fatigued
|
Proposed |
1.00 |
2019-06-26 11:27:08.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58882 |
Alkaline phosphatase sample date |
Date on which sample was collected for alkaline phosphatase test.
|
Proposed |
1.00 |
2018-12-17 10:53:01.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59829 |
Take care personal need health limit scale |
Scale of the degree to which the subject/participant's health limits his or her ability to take care of his or her personal needs, such as grooming or eating
|
Proposed |
1.00 |
2019-06-21 13:24:02.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59677 |
Ability meet needs dependents satisfied scale |
Scale of the degree to which the subject/participant is satisfied with his or her ability to meet the needs of those people who depend upon him or her
|
Proposed |
1.00 |
2019-06-19 11:54:23.0 |
PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59236 |
Do chore difficulty grade |
Grade of difficulty the subject/participant has doing chores.
|
Proposed |
1.00 |
2019-03-28 09:53:12.0 |
PhenX Toolkit: Quality of Life - Adult |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20768 |
Quality of Life - Anxiety assistance assessment past week scale |
The scale which represents how often the participant felt like help was needed for his anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.
|
Proposed |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20738 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Guiltiness assessment past week scale |
The scale which represents how often the participant felt guilty in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-20 14:29:32.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Depression |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58639 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59898 |
Able do usual activity past 7 day extent scale |
Scale over the past 7 days of the extent to which the subject/participant was able to do his or her usual activities
|
Proposed |
1.00 |
2019-06-25 10:52:58.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59681 |
Ability do all important group activity satisfied scale |
Scale of the degree to which the subject/participant is satisfied with his or her ability to do all of the group activities that are important to him or herself
|
Proposed |
1.00 |
2019-06-19 12:01:14.0 |
PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|