CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59797 Climb stair 10 story building no stop difficulty scale

Scale of the difficulty the subject/participant has in climbing the stairs of a 10 story building without stopping

Proposed 1.00 2019-06-21 11:11:50.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59158 Difficulty starting things seven days status

Status indicating whether the participant has had trouble starting things in the past seven (7) days due to being tired

Proposed 1.00 2019-01-30 11:47:06.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C58909 Etretinate therapy chronic GVHD indicate code

Code indicating whether Etretinate therapy was used to treat chronic GVHD (graft-versus-host disease)

Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59044 Dialysis receive indicate code

Code indicating whether the patient received dialysis

Proposed 1.00 2019-01-10 12:51:43.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C58917 Infection related to pneumonia or bronchopneumonia code

Code indicating whether the patient has evidence of pneumonia or bronchopneumonia related to an infection.

Proposed 1.00 2018-12-17 15:39:31.0 Infection Form (IFN) Sickle Cell Disease Sickle Cell Disease
C59704 Wash back difficulty scale

Scale of the difficulty the subject/participant has in washing his or her back

Proposed 1.00 2019-06-19 14:05:29.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59617 Red cell distribution width percent value

Value indicating the amount of red blood cell variation in volume and size (in percent).

Proposed 1.00 2019-04-15 16:35:04.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C56572 PROMIS - Life Satisfaction life great scale

Scale related to an individual feeling as if his/her life was great in the past 4 weeks, as part of the PROMIS Life Satisfaction

Proposed 1.00 2017-06-15 13:16:18.0 PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a Sickle Cell Disease Sickle Cell Disease
C56546 PROMIS - Cognitive Function walk in room forgot what to do scale

Scale related to how often an individual has walked into a room and forgotten what he/she meant to get or do there in the past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
C58779 Female childbearing potential indicate code

Code indicating whether the subject/participant is a female of childbearing potential.

Proposed 1.00 2018-12-11 10:39:18.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59274 Child health care provider ask best choice care last 6 month indicate code

Code indicating whether in the last 6 months the child's health care provider(s) asked what the best choice of options was for the child

Proposed 1.00 2019-03-28 15:21:15.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C20781 Quality of Life - Worry assessment past week scale

The scale which represents how often the participant felt worried in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C58982 Granulocyte colony stimulating factor initiate assess period indicate code

Code indicating whether G-CSF (granulocyte colony stimulating factor) was initiated during the assessment period.

Proposed 1.00 2019-01-07 11:50:13.0 Hematopoiesis Form Sickle Cell Disease Sickle Cell Disease
C20715 Patient-Reported Outcome Measurement Information System (PROMIS) - Anger guilt assessment past week scale

The scale which represents how often the participant felt guilty about his/her anger in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C59938 Feel fatigue past 7 day extent scale

Scale of the extent over the past 7 days to which the subject/participant felt fatigued

Proposed 1.00 2019-06-26 11:27:08.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58882 Alkaline phosphatase sample date

Date on which sample was collected for alkaline phosphatase test.

Proposed 1.00 2018-12-17 10:53:01.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59829 Take care personal need health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to take care of his or her personal needs, such as grooming or eating

Proposed 1.00 2019-06-21 13:24:02.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59677 Ability meet needs dependents satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to meet the needs of those people who depend upon him or her

Proposed 1.00 2019-06-19 11:54:23.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59236 Do chore difficulty grade

Grade of difficulty the subject/participant has doing chores.

Proposed 1.00 2019-03-28 09:53:12.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C20768 Quality of Life - Anxiety assistance assessment past week scale

The scale which represents how often the participant felt like help was needed for his anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C20738 Patient-Reported Outcome Measurement Information System (PROMIS) - Guiltiness assessment past week scale

The scale which represents how often the participant felt guilty in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C58639 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C59898 Able do usual activity past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant was able to do his or her usual activities

Proposed 1.00 2019-06-25 10:52:58.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59681 Ability do all important group activity satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to do all of the group activities that are important to him or herself

Proposed 1.00 2019-06-19 12:01:14.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 4213