CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 76 - 100 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58781 Abstinence contraception 2 form agree practice indicate code

Code indicating whether the subject/participant agrees to either practice 2 forms of contraception or true abstinence.

Proposed 1.00 2018-12-11 10:42:52.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C60093 Reticulocyte count

Count of reticulocytes

Supplemental 1.00 2021-01-14 13:06:05.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C54820 PROMIS - Dyspnea severity lift weight 5 10 pound scale

Scale related to the individual being able to lift something weighing 5-10 pounds (about 2-4.5 kg, like a basket of clothes), as part of the PROMIS Dyspnea Severity

Supplemental 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C54693 PROMIS - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

Supplemental 1.00 2017-04-07 15:34:25.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C60189 Organ dysfunction multiple indicator

Indicator of whether the subject/participant experienced dysfunction of multiple organs.

Supplemental 1.00 2021-02-24 12:29:50.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C60396 Mean corpuscular volume value

Value indicating mean corpuscular volume (MCV) (fL) as measured during the complete blood count panel test.

Exploratory 1.00 2019-04-15 16:33:51.0 Adhesion and Viscosity Sickle Cell Disease Sickle Cell Disease
C58614 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Want be alone because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant wanted to be alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C56488 PROMIS - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60081 Other features prominent indicator

Indicator of whether the other specified feature(s) the subject/participant presents with is/are (a) prominent clinical feature(s).

Supplemental 1.00 2020-09-03 15:35:46.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C56416 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale 4 T score sum value

The sum of all four of the subject's T scores, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Supplemental 1.00 2017-06-12 11:40:41.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C59740 Hold plate full food difficulty scale

Scale of the difficulty the subject/participant has in holding a plate full of food

Supplemental 1.00 2019-06-20 11:23:03.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59664 Amount things do friends happiness scale

Scale for the degree to which the subject/participant feels happy with the amount of things he or she does for his or her friends

Proposed 1.00 2019-06-19 10:26:28.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59896 Have trouble finish thing because tired past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant had trouble finishing things because he or she was tired

Core 1.00 2019-06-25 10:45:27.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C21490 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest total raw score

Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C60213 Medical history psychological mental health condition onset year date

Year part of the date of onset of the subject/participant's condition selected in "Medical history psychological mental health condition type".

Core 1.00 2021-02-24 15:57:31.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60674 Vector integrating positive percentage value

The percentage related to vector integrating positive cells.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C59517 Birthplace US state name

Name of the US state where the subject/participant was born

Proposed 1.00 2019-04-10 12:45:34.0 PhenX Toolkit: Birthplace Sickle Cell Disease Sickle Cell Disease
C60041 Pneumonia infectious organism code other text

The free-text field related to 'Pneumonia infectious organism 1 code', 'Pneumonia infectious organism 2 code', or 'Pneumonia infectious organism 3 code', specifying other text.

Supplemental 1.00 2020-09-02 14:17:24.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C59700 Step on off curb difficulty scale

Scale of the difficulty the subject/participant has in stepping on and off roadside curbs

Supplemental 1.00 2019-06-19 13:55:41.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59831 Take part any sport health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to take part in any sports

Supplemental 1.00 2019-06-21 13:31:15.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C20744 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59856 Have energy enjoy fun thing past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had the energy to enjoy the things he or she does for fun

Core 1.00 2019-06-24 13:06:28.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56339 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59225 Fatigue interfere sport exercise past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant had fatigue that interfered with sports or exercise

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
Displaying 76 - 100 of 5231