CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 76 - 100 of 4213
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59262 Pain interfere social activity past 7 day grade

Grade of interference with social activities due to pain over the past 7 days

Proposed 1.00 2019-03-28 11:19:14.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C58888 Fascitis present indicate code

Code indicating whether fascitis is present in the subject/participant.

Proposed 1.00 2018-12-17 11:15:19.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59102 Fever grade

Grade of fever exhibited by the patient

Proposed 1.00 2019-01-15 14:30:15.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C58823 Assessment period start date

Date of the beginning of the assessment period

Proposed 1.00 2018-12-12 15:06:29.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C20815 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale

The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C20789 Quality of Life - Worry many situation assessment past week scale

The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C56454 PROMIS - Pain Behavior when pain ask one or more to leave alone scale

Scale related to the individual feeling as if when in pain he/she asked one or more people to leave him/her alone in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C56501 PROMIS - Pain Interference pain interfere with ability to remember things scale

Scale related to how much pain interfered with an individual's ability to remember things in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C54807 PROMIS - Dyspnea severity walk half mile scale

Scale related to the individual being able to walk 1/2 mile (almost 1 km) without stopping, as part of the PROMIS Dyspnea Severity

Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C59910 Fatigue on day most fatigued past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt fatigued on the day he or she felt most fatigued

Proposed 1.00 2019-06-25 11:32:23.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58647 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58975 Etiology liver abnormality other indicate code other text

The free-text field related to 'Etiology liver abnormality other indicate code' specifying other text.

Proposed 1.00 2019-01-04 14:09:08.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C58942 GVHD immunosuppressant prophylaxis receive type code

Code for the type of prophylactic immunosuppressant for GVHD (graft-versus-host disease) received by the patient during the assessment period.

Proposed 1.00 2019-01-04 13:43:11.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C59840 Do 8 hour physical labor health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to perform 8 hours of physical labor

Proposed 1.00 2019-06-21 13:49:48.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56412 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning T score

The T score converted from the raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Proposed 1.00 2017-06-12 11:23:35.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C20778 Patient-Reported Outcome Measurement Information System (PROMIS) - Public place activity avoidance past week scale

The scale which represents how often the participant avoided public places or activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C56453 PROMIS - Pain Behavior pain cause bend over walk scale

Scale related to the individual feeling as in pain caused him/her to bend over while walking in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C56501 PROMIS - Pain Interference pain interfere with ability to remember things scale

Scale related to how much pain interfered with an individual's ability to remember things in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C20757 Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59187 Blood draw complete indicator

Indicator of whether the full amount of the blood draw was obtained.

Proposed 1.00 2019-03-27 10:45:35.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C59840 Do 8 hour physical labor health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to perform 8 hours of physical labor

Proposed 1.00 2019-06-21 13:49:48.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59870 Difficult start new thing due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant found it difficult to start anything new due to his or her fatigue

Proposed 1.00 2019-06-24 13:56:27.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58656 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Kidney damage medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has kidney damage, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C58714 History acute chest syndrome despite care two year before enrollment indicate code

Code indicating whether the subject/participant has a history of acute chest syndrome (ACS) during the two years prior to enrollment, despite the institution of supportive care measures.

Proposed 1.00 2018-12-06 09:48:32.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58582 Genetic typing method code

Code for the type of method used for genetic typing.

Proposed 1.00 2018-10-23 11:52:51.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
Displaying 76 - 100 of 4213