CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 4213
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C20734 Patient-Reported Outcome Measurement Information System (PROMIS) - No reason upset assessment past week scale

The scale which represents how often the participant felt upset for no reason in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C58644 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C56462 PROMIS - Pain Behavior when pain quiet withdrawn scale

Scale related to the individual feeling as if when he/she was in pain he/she became quiet and withdrawn in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C20724 Patient-Reported Outcome Measurement Information System (PROMIS) - Anger assistance assessment past week scale

The scale which represents how often the participant felt like help was needed for his/her anger in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger Sickle Cell Disease Sickle Cell Disease
C58946 Etiology skin abnormality drug reaction indicate code

Code indicating whether the etiology of the skin abnormality was determined to be a drug reaction.

Proposed 1.00 2019-01-04 13:57:59.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C56491 PROMIS - Pain Interference pain interfere with relationship others scale

Scale related to how much pain interfered with an individual's relationships with other people in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58856 Platelet minimum time diagnosis count

Minimum count of platelets per cubic millimeter at the time of diagnosis.

Proposed 1.00 2018-12-14 12:23:41.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C58749 Last contact date

Indicate the date of the last study visit.

Proposed 1.00 2018-12-10 09:46:30.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C59850 Feel fatigue beyond control past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt his or her fatigue was beyond his or her control

Proposed 1.00 2019-06-24 10:09:11.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58953 Etiology upper GI abnormality drug reaction indicate code

Code indicating whether the etiology of the upper GI (gastrointestinal tract) abnormality was determined to be a drug reaction.

Proposed 1.00 2019-01-04 13:57:59.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C58719 Pain crisis 1 year prior enrollment start date

Start date of the severe vaso-occlusive pain crisis or painful episode related to priapism, osteonecrosis, or sickle-related complication one year prior to enrollment.

Proposed 1.00 2018-12-06 10:12:39.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59685 Moderate chore difficulty scale

Scale of the difficulty the subject/participant has in performing moderate chores (such as vacuuming or yard work)

Proposed 1.00 2019-06-19 12:50:37.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59270 Child non-urgent medical appointment last 6 month count range

Range of the count of non-urgent medical appointments attended by the child in the last 6 months

Proposed 1.00 2019-03-28 12:42:34.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C58912 Zenapax therapy chronic GVHD indicate code

Code indicating whether Zenapax (Daclizumab) therapy was used to treat chronic GVHD (graft-versus-host disease)

Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59060 Cardiac arrhythmia specify text

Text specifying the cardiac arrhythmia exhibited by the patient.

Proposed 1.00 2019-01-11 10:46:51.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59685 Moderate chore difficulty scale

Scale of the difficulty the subject/participant has in performing moderate chores (such as vacuuming or yard work)

Proposed 1.00 2019-06-19 12:50:37.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58771 HIV positive serology infection indicate code

Code indicating whether the subject/participant has evidence of either HIV (Human Immunodeficiency Virus) infection or HIV positive serology.

Proposed 1.00 2018-12-10 16:10:18.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59810 Put 50 pound 25 kilogram bag sand car difficulty scale

Scale of the difficulty the subject/participant has in loading a 50 pound / 25 kilogram bag of sand into a car

Proposed 1.00 2019-06-21 11:44:53.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C20821 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale

The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C59179 Haptoglobin measurement

Measurement, in milligrams per deciliter, of the subject/participant's haptoglobin level.

Proposed 1.00 2019-03-26 13:32:11.0 PhenX Toolkit: Haptoglobin level Sickle Cell Disease Sickle Cell Disease
C59122 Hyperpigmentation skin under nail indicate code

Code indicating whether the patient has hyperpigmentation of the skin under the nails

Proposed 1.00 2019-01-17 07:19:38.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59628 Weight value measurement

Weight measurement of subject/participant.

Proposed 1.00 2019-04-22 11:07:41.0 PhenX Toolkit: Weight - Measured Weight Sickle Cell Disease Sickle Cell Disease
C58698 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stay awake daytime struggle past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant struggled to stay awake during the daytime, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C59810 Put 50 pound 25 kilogram bag sand car difficulty scale

Scale of the difficulty the subject/participant has in loading a 50 pound / 25 kilogram bag of sand into a car

Proposed 1.00 2019-06-21 11:44:53.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C21106 Gait assessment result other text

The free-text field to specify the other result of the gait assessment

Proposed 1.00 2015-06-02 16:57:18.0 Neurological Exam Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 4213