CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59856 Have energy enjoy fun thing past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had the energy to enjoy the things he or she does for fun

Core 1.00 2019-06-24 13:06:28.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58639 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C20741 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56335 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56450 PROMIS - Pain Behavior when pain gasp scale

Scale related to the individual feeling as if when he/she was in pain he/she gasped in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C59222 Difficult have fun past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant had difficulty having fun

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C21506 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest total raw score

Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Processing Speed Index Subtest of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Sickle Cell Disease Sickle Cell Disease
C59791 Lift heavy object over head difficulty scale

Scale of the difficulty the subject/participant has in lifting a heavy object (20 pounds / 10 kilograms) above his or her head

Supplemental 1.00 2019-06-21 10:53:44.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59477 Difficult use hand most affect stroke open can jar past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to open a can or jar

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C54688 PROMIS - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C19777 Medical history wheezing pulmonary assessment indicator

Indicator of wheezing

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C56326 NIH Toolbox Cognitive - Dimensional change card sort age 3 up computed score

The computed score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:36:24.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59096 Etiology liver abnormality unknown indicate code

Code indicating whether the etiology of the liver abnormality was unknown.

Proposed 1.00 2019-01-04 13:57:59.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59113 Iron overload grade

Grade of iron overload exhibited by the patient.

Supplemental 1.00 2019-01-16 12:03:06.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59279 Birth date unknown status

Status indicating whether a subject/participant refused to disclose date of birth or is unknown.

Proposed 1.00 2019-03-28 16:21:06.0 PhenX Toolkit: Current Age Sickle Cell Disease Sickle Cell Disease
C59945 Participant living last known date

Date on which the subject/participant was most recently known to be living.

Core 1.00 2020-08-19 14:57:14.0 Death Form Sickle Cell Disease Sickle Cell Disease
C55781 Imaging statistical test significance level outline text

Text outlining the statistical test(s) and significance levels for comparison between the test and control groups of the imaging study.

Supplemental 1.00 2017-05-31 12:39:11.0 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C56287 NIH Toolbox Cognitive - Cognition fluid composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C55705 PROMIS - Self Efficacy managing emotions relax deal with worry scale

Scale related to an individual being able to use relaxation to deal with worries, as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C58774 First cerebrovascular event date

Date indicating the first occurrence of any significant cerebrovascular event during the assessment period.

Proposed 1.00 2018-12-10 16:31:57.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C60489 Burst forming unit erythroid cell positive for integrating viral vector percent value

Value of the percentage of burst-forming unit - erythroid (BFU-E) cells positive for the integrating viral vector.

Supplemental 1.00 2021-04-22 13:33:03.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59188 Blood draw comment text

The free-text field for recording comments about the blood draw.

Proposed 1.00 2019-03-27 10:48:16.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C52879 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A follow trail complete time

The element related to the time it takes the participant/subject to follow the trail in Part A as part of the Trail Making Test (TMT).

Supplemental 1.00 2017-02-01 10:54:10.0 Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Sickle Cell Disease Sickle Cell Disease
C20847 Patient-Reported Outcome Measurement Information System (PROMIS) - Daytime activity difficulty poor sleep past week scale

The scale which represents how often the participant's daytime activities were disturbed by poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C58669 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep easy past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant easily fell asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 5231