CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60379 Radiation therapy administered type

the type of radiation therapy administered.

Supplemental 1.00 2021-04-04 21:41:37.0 Conditioning Regimen Sickle Cell Disease Sickle Cell Disease
C56611 Imaging high low pass filter approach used indicator

The indicator relating to whether the High/Low Pass filter approach was used during preprocessing.

Supplemental ? Highly Recommended 1.00 2017-06-19 11:16:06.0 Functional Magnetic Resonance Imaging (fMRI) Sickle Cell Disease Sickle Cell Disease
C60258 Cardiac MRI left anterior descending artery mid anteroseptal segment rest status

Status at rest of the mid anteroseptal segment of the subject/participant's left anterior descending artery (LAD), assessed by cardiac MRI.

Exploratory 1.00 2021-03-02 16:16:42.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C20827 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale

The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C21506 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest total raw score

Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C60392 Sample collect date

Date on which a sample was collected.

Core 1.00 2021-01-15 16:40:21.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60123 Packed red blood cell transfusion indicator

Indicator of whether the subject/participant received a packed red blood cell (PRBC) transfusion during the splenic sequestration episode being reported.

Core 1.00 2021-01-15 10:12:11.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C59702 Stand knee straight difficulty scale

Scale of the difficulty the subject/participant has in standing with his or her knees straight

Supplemental 1.00 2019-06-19 14:01:40.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C60347 Kidney size left side ultrasound measurement unit of measure

Unit of measure for the measurement of the size of the left kidney as determined by ultrasound.

Exploratory 1.00 2021-03-15 15:31:10.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C59980 Immunoglobulin A not tested status

Status indicating that the subject/participant's immunoglobulin A (IgA) was not tested.

Supplemental 1.00 2020-09-01 13:50:15.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C56394 Conners Continuous Performance Test 3rd Edition (CPT3) - Sustained attention commission block count

The number of incorrect responses to non-targets by block, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Supplemental 1.00 2017-06-09 15:44:12.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C60218 Imaging complication text

Text describing complications affecting imaging.

Supplemental 1.00 2021-03-02 13:08:21.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C56350 NIH Toolbox Cognitive - Oral reading recognition english age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59584 Chronic transfusion therapy indicator

Indicator of whether subject/participant is currently on chronic transfusion therapy.

Proposed 1.00 2019-04-12 12:13:33.0 PhenX Toolkit: History of Transfusion Sickle Cell Disease Sickle Cell Disease
C60104 Transfusion required indicator

Indicator of whether the subject/participant requires a transfusion because of his or her anemia.

Core 1.00 2021-01-14 14:52:13.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C56294 NIH Toolbox Cognitive - Cognition early childhood composite fully adjusted scale score

The fully adjusted scale score for the Cognition Early Childhood field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:56:45.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59177 Cancer chemotherapy past or next four weeks indicate code

Code indicating whether the subject/participant has had cancer chemotherapy in the past four weeks or anticipates having it in the next four weeks.

Proposed 1.00 2019-03-26 12:35:43.0 PhenX Toolkit: Lactate Dehydrogenase level Sickle Cell Disease Sickle Cell Disease
C59422 Child stroke rehabilitation treatment current type

Type of stroke rehabilitation treatment the respondent's child is currently receiving

Proposed 1.00 2019-04-04 11:10:44.0 PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C59943 Study followup loss reason

Reason for which the subject/participant was lost to study follow-up.

Supplemental 1.00 2020-08-19 14:51:51.0 Death Form Sickle Cell Disease Sickle Cell Disease
C56335 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59028 Six minute walk test complete indicate code

Code indicating whether the patient completed the six minute walk test.

Proposed 1.00 2019-01-08 12:20:50.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C59292 Easy obtain counseling child last 6 month frequency scale

Scale of the frequency in the last 6 months that it was easy to obtain counseling or treatment for emotional, developmental, or behavioral problems for the child.

Proposed 1.00 2019-03-28 15:16:41.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C56300 NIH Toolbox Cognitive - Cognition total composite fully adjusted scale score

The total composite fully adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:56:45.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59552 Primary caregiver relation patient type

Type of relationship of the subject/participant's primary caregiver to the subject/participant

Proposed 1.00 2019-04-11 11:33:53.0 PhenX Toolkit: Marital Status of Primary Caregiver Sickle Cell Disease Sickle Cell Disease
C56540 PROMIS - Cognitive Function trouble find way familiar place scale

Scale related to how often an individual has had trouble finding his/her way to a familiar place in the past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 5231