CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 126 - 150 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C21483 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest response text

Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C60206 Medical history for sickle cell condition other disease ailment other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for other diseases or ailments..

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C56345 NIH Toolbox Cognitive - Picture sequence memory age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Sequence memory Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C55677 PROMIS - Dyspnea Functional limitations put socks stockings on scale

Scale related to an individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Functional Limitations

Supplemental 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C60034 Meningitis encephalitis infectious organism 3 code

Code specifying the third infectious organism pertaining to the subject/participant's meningitis or encephalitis that was identified.

Supplemental 1.00 2020-09-02 13:41:44.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C56302 NIH Toolbox Cognitive - Picture vocabulary age 3 up computed score

The computed score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:06:59.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C58630 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joints stiff when awaken past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff when he or she awakened, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C20765 Patient-Reported Outcome Measurement Information System (PROMIS) - Household responsibity regular person ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do regular personal and household responsibilities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59218 Feel worried at home past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt worried while at home

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C21502 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial number

Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Processing Speed Index Subtest of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Sickle Cell Disease Sickle Cell Disease
C56295 NIH Toolbox Cognitive - Cognition total composition raw score

The total composite raw score for the Cognition field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:58:36.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59473 Difficult climb several flight stairs past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks to climb several flights of stairs

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C56407 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score

The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Proposed 1.00 2017-06-12 11:23:35.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C59079 Weight gain greater 5 percent over baseline indicate code

Code indicating whether weight gain greater than 5 percent above baseline is exhibited by the patient.

Proposed 1.00 2019-01-11 14:28:31.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59109 Anaphylaxis grade

Grade of anaphylaxis exhibited by the patient.

Supplemental 1.00 2019-01-16 11:49:21.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C56336 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59350 Respondent receive help complete questionnaire indicate code

Code indicating whether the respondent received assistance in completing the questionnaire.

Proposed 1.00 2019-04-01 13:50:03.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59086 Consent withdrawal date

Date indicating when patient withdrew consent

Supplemental 1.00 2019-01-14 14:14:15.0 Death Form Sickle Cell Disease Sickle Cell Disease
C59907 Tired feel average past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt tired on average

Core 1.00 2019-06-25 11:25:14.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58767 Significant cerebrovascular event code

Code indicating whether the patient experienced a new onset of a significant cerebrovascular event (stroke, transient ischemic attack, or seizure) during this assessment period.

Proposed 1.00 2018-12-10 15:13:50.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C60485 Integrating viral vector copy number blood CD15 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD15+ lineage

Supplemental 1.00 2021-04-22 13:25:18.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59177 Cancer chemotherapy past or next four weeks indicate code

Code indicating whether the subject/participant has had cancer chemotherapy in the past four weeks or anticipates having it in the next four weeks.

Proposed 1.00 2019-03-26 12:35:43.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C54704 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit car stop traffic code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting in a car stopped in traffic, as part of the Epworth Sleepiness Scale (ESS)

Supplemental 1.00 2017-04-10 11:48:33.0 Epworth Sleepiness Scale (ESS) - Adult Version Sickle Cell Disease Sickle Cell Disease
C21483 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest response text

Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C59689 Stand up armless straight chair difficulty scale

Scale of the difficulty the subject/participant has in standing up from an armless straight chair

Supplemental 1.00 2019-06-19 13:28:47.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
Displaying 126 - 150 of 5231