CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 126 - 150 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58648 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C20746 Patient-Reported Outcome Measurement Information System (PROMIS) - Current level friend activity satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C19834 Psychiatric depression onset date

Date of onset of depression first

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C56283 NIH Toolbox Cognitive - Cognition fluid composite raw score

The raw score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:42:54.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59227 Feel accepted by peers past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt accepted by his or her peers

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59482 Limited quiet recreation past 4 week scale

Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her quiet recreational activities

Proposed 1.00 2019-04-05 12:23:41.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C56279 NIH Toolbox Cognitive - Cognition crystallized composite unadjusted scale score

The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:37:05.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56483 PROMIS - Pain Interference pain interfere ability participate leisure scale

Scale related to how much pain interfered with an individual's ability to participate in leisure activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59101 Transfusion related reaction grade

Grade of the patient's reaction related to blood transfusion

Proposed 1.00 2019-01-15 14:23:40.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59118 Thrombocytopenia grade

Grade of thrombocytopenia (decreased platelet count) exhibited by the patient

Supplemental 1.00 2019-01-16 13:49:19.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59352 Medical appointment schedule timely last 12 month frequency Status

Status of the frequency that medical appointments could be scheduled in a timely manner in the last 12 months

Proposed 1.00 2019-04-01 14:51:39.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C59950 Death cause primary intermediate reason

Reason which was the primary or intermediate cause of death of the subject/participant.

Supplemental 1.00 2020-08-19 15:24:48.0 Death Form Sickle Cell Disease Sickle Cell Disease
C56452 PROMIS - Pain Behavior when pain show on face scale

Scale related to the individual feeling as if when he/she was in pain it showed on his/her face (squinting eyes, opening eyes wide, frowning) in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C58797 Onset increased creatinine date

Date indicating when new onset of increased creatinine occurred.

Proposed 1.00 2018-12-12 11:34:11.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C60494 Bone marrow CD34 plus cell positive for integrating viral vector percent value

Value of the percentage of bone marrow CD34+ cells positive for the integrating viral vector.

Supplemental 1.00 2021-04-22 13:33:03.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59176 Hemophilia indicate code

Code indicating whether the subject/participant has hemophilia.

Proposed 1.00 2019-03-26 12:31:08.0 PhenX Toolkit: Serum or Plasma Ferritin Sickle Cell Disease Sickle Cell Disease
C54084 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total error count

The total number of errors made by the participant during their completion of Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

Supplemental 1.00 2017-02-13 00:00:00.0 Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Sickle Cell Disease Sickle Cell Disease
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C54690 PROMIS - Global Health mental health rate scale

Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C58645 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Loneliness because health past 7 day scale

Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58974 Etiology liver abnormality other indicate code

Code indicating whether the etiology of the liver abnormality was determined to be Other.

Proposed 1.00 2019-01-04 13:57:59.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59064 Thrombotic thrombocytopenic purpura grade

Grade of thrombotic thrombocytopenic purpura exhibited by the patient.

Supplemental 1.00 2019-01-11 11:04:12.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C55707 PROMIS - Self Efficacy managing emotions anxiety about injury to self other scale

Scale related to an individual being able to manage anxiety about injuring him/herself or others (for example: falling, dropping a child, a driving accident), as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C55775 Imaging ictal pain intensity value

The value related to the intensity of the subject's pain if the timing is ictal

Supplemental 1.00 2017-05-31 12:19:15.0 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C58794 Patient consent blood sample optional study specific research date

Date on which the subject/participant gave consent to provide blood samples for optional study-specific research.

Proposed 1.00 2018-12-11 13:46:09.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
Displaying 126 - 150 of 5231