C58640 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Limb move quickly easiness scale |
Scale for the subject/participant's ease of moving his or her limbs quickly, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20844 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale |
The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-21 09:54:31.0 |
PROMIS Item Bank v1.0 - Sleep Related Impairment |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59235 |
Pain intensity average past 7 day scale |
Scale of the subject/participant's average pain intensity over the past 7 days
|
Proposed |
1.00 |
2019-03-27 15:01:10.0 |
PROMIS Numeric Rating Scale v. 1.0 - Pain Intensity 1a |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59820 |
Bend kneel stoop health limit scale |
Scale of the degree to which the subject/participant's health limits his or her ability to bend, kneel, or stoop
|
Proposed |
1.00 |
2019-06-21 12:29:12.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58982 |
Granulocyte colony stimulating factor initiate assess period indicate code |
Code indicating whether G-CSF (granulocyte colony stimulating factor) was initiated during the assessment period.
|
Proposed |
1.00 |
2019-01-07 11:50:13.0 |
Hematopoiesis Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59176 |
Hemophilia indicate code |
Code indicating whether the subject/participant has hemophilia.
|
Proposed |
1.00 |
2019-03-26 12:31:08.0 |
PhenX Toolkit: Reticulocyte Count |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C21920 |
Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest number series text |
Series of numbers, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest
|
Proposed |
1.00 |
2016-06-06 13:52:24.0 |
Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59655 |
Leisure activity ability do satisfied scale |
Scale of the degree to which the subject/participant is satisfied with his or her ability to do leisure activities
|
Proposed |
1.00 |
2019-06-19 10:29:55.0 |
PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58894 |
Biopsy date |
Date on which the biopsy was performed.
|
Proposed |
1.00 |
2018-12-17 11:48:05.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59244 |
Feel worthless past 7 day frequency grade |
Grade of frequency over the past 7 days that the subject/participant felt worthless
|
Proposed |
1.00 |
2019-03-28 10:10:17.0 |
PhenX Toolkit: Quality of Life - Adult |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20700 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Closeness other people trouble assessment past week scale |
The scale which represents how often the participant had trouble feeling close to people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-20 14:29:32.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Depression |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58650 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20788 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Indecisiveness assessment past week scale |
The scale which represents how often the participant felt indecisive in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C57969 |
Laboratory procedure percent monocytes value |
Value of percent monocytes.
|
Proposed |
1.00 |
2018-01-22 11:03:02.0 |
PhenX Protocol: Complete Blood Count (CBC) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C19772 |
Medical history pulmonary function test assessment indicator |
Indicator of pulmonary function tests completed
|
Proposed |
1.00 |
2015-02-05 00:00:00.0 |
Intake Medical History |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59159 |
Seven day run down feeling status |
Status indicating whether subject or participant has felt run-down during the past seven (7) days.
|
Proposed |
1.00 |
2019-01-30 16:31:01.0 |
PROMIS Item Bank v1.0 (PRO) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59475 |
Difficult use hand most affect stroke carry heavy object past 2 week scale |
Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to carry heavy objects
|
Proposed |
1.00 |
2019-04-04 15:25:21.0 |
PhenX Toolkit: Functionality After Stroke |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C55718 |
PROMIS - Self Efficacy managing emotions handle negative feelings scale |
Scale related to an individual being able to handle negative feelings, as part of the PROMIS Self-Efficacy Managing Emotions
|
Proposed |
1.00 |
2017-05-25 13:38:58.0 |
PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58712 |
Neurological event information not available specify text |
Text field for specifying why information about a neurological event was not available.
|
Proposed |
1.00 |
2018-12-06 09:36:32.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59113 |
Iron overload grade |
Grade of iron overload exhibited by the patient.
|
Proposed |
1.00 |
2019-01-16 12:03:06.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20835 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale |
The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-21 08:50:35.0 |
PROMIS Item Bank v1.0 - Sleep Disturbance |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58633 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint very stiff daytime past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20777 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration trouble assessment past week scale |
The scale which represents how often the participant had trouble paying attention in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C54615 |
Brief Test of Executive Function Second Edition (BRIEF 2) - Organize material total raw scale score |
Total score of the raw scale for the organization of materials function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)
|
Proposed |
1.00 |
2017-03-22 09:57:02.0 |
Behavior Rating Inventory of Executive Function (BRIEF) Second Edition (BRIEF-2) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59934 |
Fatigue interfere physical function past 7 day extent scale |
Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her physical functioning
|
Proposed |
1.00 |
2019-06-26 10:56:43.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|