CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 126 - 150 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58640 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Limb move quickly easiness scale

Scale for the subject/participant's ease of moving his or her limbs quickly, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C20844 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale

The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C59235 Pain intensity average past 7 day scale

Scale of the subject/participant's average pain intensity over the past 7 days

Proposed 1.00 2019-03-27 15:01:10.0 PROMIS Numeric Rating Scale v. 1.0 - Pain Intensity 1a Sickle Cell Disease Sickle Cell Disease
C59820 Bend kneel stoop health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to bend, kneel, or stoop

Proposed 1.00 2019-06-21 12:29:12.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58982 Granulocyte colony stimulating factor initiate assess period indicate code

Code indicating whether G-CSF (granulocyte colony stimulating factor) was initiated during the assessment period.

Proposed 1.00 2019-01-07 11:50:13.0 Hematopoiesis Form Sickle Cell Disease Sickle Cell Disease
C59176 Hemophilia indicate code

Code indicating whether the subject/participant has hemophilia.

Proposed 1.00 2019-03-26 12:31:08.0 PhenX Toolkit: Reticulocyte Count Sickle Cell Disease Sickle Cell Disease
C21920 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

Proposed 1.00 2016-06-06 13:52:24.0 Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) Sickle Cell Disease Sickle Cell Disease
C59655 Leisure activity ability do satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to do leisure activities

Proposed 1.00 2019-06-19 10:29:55.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58894 Biopsy date

Date on which the biopsy was performed.

Proposed 1.00 2018-12-17 11:48:05.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59244 Feel worthless past 7 day frequency grade

Grade of frequency over the past 7 days that the subject/participant felt worthless

Proposed 1.00 2019-03-28 10:10:17.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C20700 Patient-Reported Outcome Measurement Information System (PROMIS) - Closeness other people trouble assessment past week scale

The scale which represents how often the participant had trouble feeling close to people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C58650 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C20788 Patient-Reported Outcome Measurement Information System (PROMIS) - Indecisiveness assessment past week scale

The scale which represents how often the participant felt indecisive in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C57969 Laboratory procedure percent monocytes value

Value of percent monocytes.

Proposed 1.00 2018-01-22 11:03:02.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C19772 Medical history pulmonary function test assessment indicator

Indicator of pulmonary function tests completed

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59159 Seven day run down feeling status

Status indicating whether subject or participant has felt run-down during the past seven (7) days.

Proposed 1.00 2019-01-30 16:31:01.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C59475 Difficult use hand most affect stroke carry heavy object past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to carry heavy objects

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C55718 PROMIS - Self Efficacy managing emotions handle negative feelings scale

Scale related to an individual being able to handle negative feelings, as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C58712 Neurological event information not available specify text

Text field for specifying why information about a neurological event was not available.

Proposed 1.00 2018-12-06 09:36:32.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59113 Iron overload grade

Grade of iron overload exhibited by the patient.

Proposed 1.00 2019-01-16 12:03:06.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C20835 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale

The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C58633 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint very stiff daytime past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C20777 Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration trouble assessment past week scale

The scale which represents how often the participant had trouble paying attention in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C54615 Brief Test of Executive Function Second Edition (BRIEF 2) - Organize material total raw scale score

Total score of the raw scale for the organization of materials function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Proposed 1.00 2017-03-22 09:57:02.0 Behavior Rating Inventory of Executive Function (BRIEF) Second Edition (BRIEF-2) Sickle Cell Disease Sickle Cell Disease
C59934 Fatigue interfere physical function past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her physical functioning

Proposed 1.00 2019-06-26 10:56:43.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 126 - 150 of 4213