CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 176 - 200 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other restlessness while asleep past month scale other text

The free-text related to 'PSQIPrtnrRprtOthRestPastMoScl' specifying other text

Supplemental 1.00 2015-03-11 11:17:32.0 Pittsburgh Sleep Quality Index (PSQI) Sickle Cell Disease Sickle Cell Disease
C59377 Health care last 12 month 0 10 rating number

Number of the rating from 0 to 10 the subject/participant gives to all of the health care he or she received over the last 12 months

Proposed 1.00 2019-04-02 11:08:11.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C58794 Patient consent blood sample optional study specific research date

Date on which the subject/participant gave consent to provide blood samples for optional study-specific research.

Proposed 1.00 2018-12-11 13:46:09.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C20757 Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C21501 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest item number

Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C56349 NIH Toolbox Cognitive - Oral reading recognition english age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59208 Rise from floor past 7 day difficulty code

Code denoting the difficulty that the subject/participant has had in the past 7 days rising from the floor

Proposed 1.00 2019-03-27 13:13:25.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C21496 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest item score

Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Processing Speed Index Subtest of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Sickle Cell Disease Sickle Cell Disease
C58624 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Rely other for care because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant relied on others for care because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C59467 Difficult continue stand without lose balance past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks to continue standing without losing his or her balance

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C59103 Maculo-papular rash grade

Grade of the patient's maculo-papular rash

Supplemental 1.00 2019-01-15 14:38:17.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C20839 Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken alert past week scale

The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C59344 Age year value

Age in years of the subject/participant

Proposed 1.00 2019-04-01 13:02:27.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C56572 PROMIS - Life Satisfaction life great scale

Scale related to an individual feeling as if his/her life was great in the past 4 weeks, as part of the PROMIS Life Satisfaction

Proposed 1.00 2017-06-15 13:16:18.0 PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a Sickle Cell Disease Sickle Cell Disease
C59922 Have trouble start thing due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant had trouble starting things due to his or her fatigue

Core 1.00 2019-06-26 10:17:21.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60479 Integrating viral vector for hematopoietic stem progenitor cell therapy promoter enhancer component text

Text field for describing the promoter and/or enhancer component(s) of the integrating viral vector(s) used for genetic manipulation of hematopoietic stem and progenitor cells.

Supplemental 1.00 2021-04-22 13:06:17.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C56299 NIH Toolbox Cognitive - Cognition total composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Total Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59184 N-terminal pro-brain natriuretic peptide measurement

Measurement of N-terminal Pro-brain Natriuretic Peptide (NT-proBNP).

Proposed 1.00 2019-03-27 10:04:23.0 PhenX Toolkit: N-terminal Pro-brain Natriuretic Peptide (NT-proBNP) level Sickle Cell Disease Sickle Cell Disease
C54698 Epworth Sleepiness Scale (ESS) - Doze off likelihood watch television code

The code denoting the subect/participant's self-reported likelihood of dozing off while watching television (TV), as part of the Epworth Sleepiness Scale (ESS)

Supplemental 1.00 2017-04-10 11:48:33.0 Epworth Sleepiness Scale (ESS) - Adult Version Sickle Cell Disease Sickle Cell Disease
C59687 Exercise 1 hour difficulty scale

Scale of the difficulty the subject/participant has in exercising for one hour

Supplemental 1.00 2019-06-19 12:55:46.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C60693 Apheresis mobilization other agent dose value

The dose related other agent for mobilization in apheresis.

Exploratory 1.00 2021-05-10 12:12:04.0 Apheresis Sickle Cell Disease Sickle Cell Disease
C58976 Liver biopsy GVHD result code

Code for the result of the liver biopsy performed for graft-versus-host disease (GVHD)

Supplemental 1.00 2019-01-04 14:12:38.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59752 Change lightbulb overhead difficulty scale

Scale of the difficulty the subject/participant has in changing a lightbulb above his or her head

Supplemental 1.00 2019-06-20 11:50:39.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C19770 Medical history pulmonary aspiration swallowing assessment indicator

Indicator of swallowing studies completed

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C56278 NIH Toolbox Cognitive - Cognition crystallized composite computed score

The computed score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:35:23.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
Displaying 176 - 200 of 5231