CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 176 - 200 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59253 Sleep refresh past 7 day grade

Grade of refreshing sleep over the past 7 days

Proposed 1.00 2019-03-28 11:00:57.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C58708 Clincal radiologic evidence cerebral infarct 30 day prior enrollment indicate code

Code indicating whether there was clinical or radiological evidence of a recent cerebral infarct by cerebral MRI/MRA within 30 days prior to enrollment.

Proposed 1.00 2018-11-21 12:35:08.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C56394 Conners Continuous Performance Test 3rd Edition (CPT3) - Sustained attention commission block count

The number of incorrect responses to non-targets by block, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Supplemental 1.00 2017-06-09 15:44:12.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C20405 Serious adverse events anticipated indicator

Indicate whether the adverse event was anticipated.

Supplemental 1.00 2015-03-23 13:23:54.0 Serious Adverse Events Sickle Cell Disease Sickle Cell Disease
C58582 Genetic typing method code

Code for the type of method used for genetic typing.

Proposed 1.00 2018-10-23 11:52:51.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
C56284 NIH Toolbox Cognitive - Cognition fluid composite computed score

The computed score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental - Highly Recommended 1.00 2017-06-09 09:45:14.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C54605 Informant participant relationship duration unit of measure

Field related to 'Informant participant relationship duration' specifying the unit of measure of the duration for which the informant has known the participant

Proposed 1.00 2017-03-22 09:46:35.0 Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) Sickle Cell Disease Sickle Cell Disease
C60307 Echocardiogram left atrium volume measurement

Measurement in milliliters of the volume of the left atrium (LA), assessed by echocardiogram.

Core 1.00 2021-03-04 13:48:28.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C55774 Imaging headache relation time type

The type of timing of the imaging in relation to headache.

Supplemental 1.00 2017-05-31 12:14:56.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C56410 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design T score

The T score converted from the raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Proposed 1.00 2017-06-12 11:23:35.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C56381 Conners Continuous Performance Test 3rd Edition (CPT3) - Inattentiveness commission count

The number of incorrect responses to non-targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Supplemental 1.00 2017-06-09 15:30:42.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C60163 Blood pressure systolic day of diagnosis measurement

Measurement value of the subject/participant's systolic blood pressure on the day of his or her diagnosis, in millimeters of mercury (mmHg).

Core 1.00 2021-02-23 16:27:51.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C60484 Integrating viral vector copy number blood CD19 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD19+ lineage

Supplemental 1.00 2021-04-22 13:25:18.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C20731 Quality of Life - Life no reason assessment past week scale

The scale which represents how often the participant felt he/she had no reason for living in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C60055 Other infection present indicator

Indicator of whether another infection is present in the subject/participant.

Supplemental 1.00 2020-09-02 13:38:10.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C54809 PROMIS - Dyspnea severity take bath scale

Scale related to the individual being able to take a bath without help, as part of the PROMIS Dyspnea Severity

Supplemental 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C21494 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial number

Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C19814 Medical history musculoskeletal broken bones indicator

Indicator of broken bones

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59638 Social activity outside home satisfied extent scale

Scale of the degree to which the subject/participant is satisfied with the extent of his or her social activities outside his or her home.

Proposed 1.00 2019-06-18 14:30:35.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60151 Lab test result compare reference range status

Status of lab test result in comparison to reference range.

Core 1.00 2021-01-21 14:06:22.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C20375 Pittsburgh Sleep Quality Index (PSQI) - Total score

The total score, as part of the Pittsburgh Sleep Quality Index (PSQI).

Supplemental 1.00 2015-03-11 11:17:32.0 Pittsburgh Sleep Quality Index (PSQI) Sickle Cell Disease Sickle Cell Disease
C60093 Reticulocyte count

Count of reticulocytes

Supplemental 1.00 2021-01-14 13:06:05.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C58735 Serum creatinine most recent measurement

Measurement of the most recent serum creatinine evaluation.

Proposed 1.00 2018-12-06 11:59:14.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C58652 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad stop activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had to stop what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
Displaying 176 - 200 of 5231