CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 176 - 200 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58725 Tricuspid valve regurgitant jet velocity echocardiograph measurement

Measurement in meters per second of the subject/participant's tricuspid valve regurgitant jet velocity (TRJV) by echocardiograph.

Proposed 1.00 2018-12-06 10:46:12.0 Physical Exam Form - 1507 Sickle Cell Disease Sickle Cell Disease
C58613 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health prevent all activity past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant was prevented from all activity because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C20829 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale

The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C58644 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58917 Infection related to pneumonia or bronchopneumonia code

Code indicating whether the patient has evidence of pneumonia or bronchopneumonia related to an infection.

Proposed 1.00 2018-12-17 15:39:31.0 Infection Form (IFN) Sickle Cell Disease Sickle Cell Disease
C58968 Etiology liver abnormality GVHD indicate code

Code indicating whether the etiology of the liver abnormality was determined to be GVHD (graft-versus-host disease).

Proposed 1.00 2019-01-04 13:57:59.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C58741 Hyperbilirubinemia reason hyperhemolysis post transfusion hemoglobin drop indicate code

Code indicating whether the subject/participant's hyperbilirubinemia is a result of hyperhemolysis or of a severe drop in hemoglobin following blood transfusion.

Proposed 1.00 2018-12-06 12:16:18.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58845 Methotrexate use GVHD prophylaxis indicate code

Code indicating whether Methotrexate was used for GVHD (Graft Versus Host Disease) prophylaxis.

Proposed 1.00 2018-12-14 11:06:16.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C20775 Quality of Life - Sudden panic assessment past week scale

The scale which represents how often the participant had sudden feelings of panic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C58657 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Retinopathy medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has retinopathy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C59259 Activity with friend difficulty grade

Grade of difficulty doing activities with friends

Proposed 1.00 2019-03-28 11:09:43.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C58972 Etiology liver abnormality infection indicate code

Code indicating whether the etiology of the liver abnormality was determined to be an infection.

Proposed 1.00 2019-01-04 13:57:59.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C55673 PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale

Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations

Proposed 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C58799 Death indicate code

Code indicating whether the subject/participant has died

Proposed 1.00 2018-12-12 12:21:58.0 Follow Up Status Form - 1507 Sickle Cell Disease Sickle Cell Disease
C56569 PROMIS - Life Satisfaction had what wanted scale

Scale related to an individual feeling as if he/she had what she/she wanted in life in the past 4 weeks, as part of the PROMIS Life Satisfaction

Proposed 1.00 2017-06-15 12:58:13.0 PROMIS Pediatric Item Bank v1.0 - Life Satisfaction-Short Form 4a Sickle Cell Disease Sickle Cell Disease
C56424 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension IQ composite score

The subject's Verbal Comprehension IQ composite score, converted from his/her Verbal Comprehension T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Proposed 1.00 2017-06-12 11:58:34.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C58882 Alkaline phosphatase sample date

Date on which sample was collected for alkaline phosphatase test.

Proposed 1.00 2018-12-17 10:53:01.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C56411 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary T score

The T score converted from the raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Proposed 1.00 2017-06-12 11:23:35.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C59164 Seven day fatigue finishing difficulty frequency status

Status indicating the frequency in which the subject/participant experienced difficulty finishing things due to fatigue

Proposed 1.00 2019-01-31 12:24:01.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C59872 Too tired run errand past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant has been too tired to run errands

Proposed 1.00 2019-06-24 14:04:28.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56518 PROMIS - Pain Interference pain restrict social life to home scale

Scale related to how often an individual's pain restrict his/her social life to his/her home in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58901 Systemic corticosteroid therapy chronic GVHD indicate code

Code indicating whether systemic corticosteroid therapy was used to treat chronic GVHD (graft-versus-host disease)

Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C20725 Patient-Reported Outcome Measurement Information System (PROMIS) - Shout desire past week scale

The scale which represents how often the participant felt like yelling at someone in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger Sickle Cell Disease Sickle Cell Disease
C59064 Thrombotic thrombocytopenic purpura grade

Grade of thrombotic thrombocytopenic purpura exhibited by the patient.

Proposed 1.00 2019-01-11 11:04:12.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59707 Stand short period time difficulty scale

Scale of the difficulty the subject/participant has in standing for short periods of time

Proposed 1.00 2019-06-20 09:55:57.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
Displaying 176 - 200 of 4213