CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60464 Abnormal hematopoiesis best descriptor type

Type of descriptor that best characterizes the abnormal hematopoiesis identified.

Supplemental 1.00 2021-04-22 10:17:46.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59376 Emergency room longest wait sickle cell pain treatment last 12 month duration range

Range of the duration of the longest wait in the past 12 months that the subject/participant experienced at the emergency room waiting for treatment for sickle cell pain

Proposed 1.00 2019-04-02 11:00:08.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C59743 Push open door after turn knob difficulty scale

Scale of the difficulty the subject/participant has in pushing open a door after turning the doorknob

Supplemental 1.00 2019-06-20 11:29:48.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C20756 Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C18720 Imaging visual analysis location performed other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

Supplemental 1.00 2014-05-27 13:34:46.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C59207 Sport exercise past 7 day difficulty code

Code denoting the difficulty that the subject/participant has had in the past 7 days doing the same sports and exercise as his or her peers

Proposed 1.00 2019-03-27 13:13:25.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59907 Tired feel average past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt tired on average

Core 1.00 2019-06-25 11:25:14.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59466 Difficult continue sit without lose balance past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks to continue sitting without losing his or her balance

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C60405 Imaging MRI silent cerebral infarct status

Status of magnetic resonance imaging (MRI) adjudication for silent cerebral infarct(s) (SCI).

Supplemental 1.00 2021-04-07 16:19:17.0 Silent Cerebral Infarct Sickle Cell Disease Sickle Cell Disease
C54605 Informant participant relationship duration unit of measure

Field related to 'Informant participant relationship duration' specifying the unit of measure of the duration for which the informant has known the participant

Supplemental 1.00 2017-03-22 09:46:35.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C59071 Abnormal respiratory physiology supplemental oxygen indicate code

Code indicating whether the patient exhibited evidence of abnormal respiratory physiology or needed supplemental oxygen.

Proposed 1.00 2019-01-11 13:48:16.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59343 Age below 1 year code

Code indicating that the subject/participant's age is less than 1 year

Proposed 1.00 2019-04-01 12:57:55.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59703 Exercise hard half hour difficulty scale

Scale of the difficulty the subject/participant has in exercising hard for half an hour

Supplemental 1.00 2019-06-19 14:03:33.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59177 Cancer chemotherapy past or next four weeks indicate code

Code indicating whether the subject/participant has had cancer chemotherapy in the past four weeks or anticipates having it in the next four weeks.

Proposed 1.00 2019-03-26 12:35:43.0 PhenX Toolkit: N-terminal Pro-brain Natriuretic Peptide (NT-proBNP) level Sickle Cell Disease Sickle Cell Disease
C59867 Fatigue make feel think slow past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant's fatigue made him or her feel slowed down in his or her thinking

Core 1.00 2019-06-24 13:47:09.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60692 Apheresis mobilization other agent type

The other type of mobilization agent used in apheresis.

Exploratory 1.00 2021-05-10 12:12:04.0 Apheresis Sickle Cell Disease Sickle Cell Disease
C19811 Medical history abdominal liver problem indicator

Indicator of history of liver problem

Supplemental 1.00 2015-02-05 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C59084 IUBMID patient code

Code indicating IUBMID for patient

Proposed 1.00 2019-01-14 11:02:21.0 Transplant Form (TXP) - BMTCTN 15070 Sickle Cell Disease Sickle Cell Disease
C56432 PROMIS - Pain Behavior pain irritable scale

Scale related to the individual feeling as if when he/she was in pain he/she became irritable in the past seven days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C60327 Echocardiogram right ventricle size qualitative status

Status indicating the qualitative size assessment of the subject/participant's right ventricle from echocardiogram.

Supplemental 1.00 2021-03-02 13:11:19.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C56320 NIH Toolbox Cognitive - List scoring working memory age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C20706 Patient-Reported Outcome Measurement Information System (PROMIS) - Anger upset greater than other people aware past week scale

The scale which represents how often the participant was irritated more than people knew in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger Sickle Cell Disease Sickle Cell Disease
C60183 Ventilatory support non mechanical type

Type of non-mechanical ventilatory support provided to the subject/participant.

Supplemental 1.00 2021-02-24 11:56:53.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C59958 White blood cell count

Count of white blood cells (WBC) in the subject/participant's complete blood cell (CBC) sample.

Exploratory 1.00 2020-09-01 13:36:15.0 Adhesion and Viscosity Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 5231