CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C55778 Imaging inter peri ictal next headache start duration

The duration of time until the start of the subject's next inter-ictal or peri-ictal headache.

Supplemental 1.00 2017-05-31 12:23:34.0 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C58784 New onset proteinuria date

Date indicating the new onset proteinuria.

Proposed 1.00 2018-12-11 10:46:51.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C60492 Integrating viral vector copy number bone marrow colony forming cell value

Value of the integrating viral vector copy number (VCN) in bone marrow for colony forming cells (CFC).

Supplemental 1.00 2021-04-22 13:25:18.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C54695 PROMIS - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C59191 Serum creatinine assay repeatability text

Text field for describing the repeatability of the serum creatinine assay performed.

Proposed 1.00 2019-03-27 11:02:22.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C54082 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total error count

The total number of errors made by the participant during their completion of Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

Supplemental 1.00 2017-02-13 00:00:00.0 Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Sickle Cell Disease Sickle Cell Disease
C20823 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime sadness assessment past week scale

The scale which represents how often the participant felt sad at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C58672 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia half night past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had insomnia for half of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58972 Etiology liver abnormality infection indicate code

Code indicating whether the etiology of the liver abnormality was determined to be an infection.

Proposed 1.00 2019-01-04 13:57:59.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59062 Somnolence grade

Grade of somnolence exhibited by the patient

Supplemental 1.00 2019-01-11 10:56:04.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59729 Wash dish pot utensil manual stand sink difficulty scale

Scale of the difficulty the subject/participant has in washing dishes, pots, and utensils manually while standing at sink

Supplemental 1.00 2019-06-20 10:55:17.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C54689 PROMIS - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Supplemental 1.00 2017-04-07 15:34:25.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C13965 Imaging paradigm task design type

Nature of stimuli presented

Supplemental ? Highly Recommended 1.00 2012-10-05 00:00:00.0 Functional Magnetic Resonance Imaging (fMRI) Sickle Cell Disease Sickle Cell Disease
C58792 Donor have clinically significant hemoglobinopathy indicate code

Code indicating whether the donor has a clinically significant hemoglobinopathy.

Proposed 1.00 2018-12-11 13:36:00.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C60452 Premalignant malignant hematopoiesis evidence blast indicator

Indicator of the presence of blasts evidencing premalignant or malignant hematopoiesis.

Supplemental 1.00 2021-04-22 09:19:39.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C60410 Lactate dehydrogenase sample analysis date

The date related to lactate dehydrogenase sample sent for analysis.

Exploratory 1.00 2021-01-15 16:40:21.0 Adhesion and Viscosity Sickle Cell Disease Sickle Cell Disease
C58622 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Only activity TV because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant found the only activity he or she could do was watch TV because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study

Supplemental ? Highly Recommended 1.00 2014-05-27 13:34:46.0 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C60089 Sickle cell related ambulatory visit primary specialty care past 12 month count

Count of sickle-cell related ambulatory visits to primary or (sub-)specialty care in the past 12 months.

Supplemental 1.00 2021-01-12 15:56:04.0 Sickle Cell Related Acute Painful Episodes Sickle Cell Disease Sickle Cell Disease
C21486 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial number

Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C60301 Echocardiogram left ventricle outflow tract peak velocity measurement

Measurement in meters per second (m/s) of the peak velocity of the outflow tract of the left ventricle (LVOT), assessed by echocardiogram.

Supplemental 1.00 2021-03-04 13:48:28.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C56424 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension IQ composite score

The subject's Verbal Comprehension IQ composite score, converted from his/her Verbal Comprehension T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Supplemental 1.00 2017-06-12 11:58:34.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C59011 Radionuclide glomerular filtration rate measurement

Measurement, in milliliters per minute per 1.73 meter^2, of the patient's radionuclide GFR (glomerular filtration rate).

Proposed 1.00 2019-01-07 15:15:05.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C58924 Severe sepsis patient no identified organism code

Code indicating whether the patient had severe sepsis without an identified organism.

Supplemental 1.00 2018-12-17 15:59:42.0 Infection Form - Adapted from BMTCTN 15070 Sickle Cell Disease Sickle Cell Disease
C55668 PROMIS - Dyspnea Functional limitations prepare meals scale

Scale related to an individual being able to prepare meals, as part of the PROMIS Dyspnea Functional Limitations

Supplemental 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 5231