CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 226 - 250 of 5231
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56351 NIH Toolbox Cognitive - Oral reading recognition english age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C58623 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Social life suffer because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's social life suffered because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C20357 Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale

The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI).

Supplemental 1.00 2015-03-11 11:17:32.0 Pittsburgh Sleep Quality Index (PSQI) Sickle Cell Disease Sickle Cell Disease
C59602 Hemophilia indicator code

Code indicating whether subject/participant has hemophilia.

Proposed 1.00 2019-04-15 13:19:19.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C59871 Fatigue make forgetful past 7 day frequency scale

Scale of the frequency over the past 7 days that that subject/participant's fatigue made him or her more forgetful

Core 1.00 2019-06-24 13:59:23.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56475 PROMIS - Pain Behavior when pain protect part body hurt scale

Scale related to the individual feeling as if when in pain he/she protected the part of his/her body that hurt in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C56425 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension percentile rank value

The percentile rank the subject placed into with respect to the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Supplemental 1.00 2017-06-12 12:05:57.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C59427 Strength grip hand most affect stroke past week scale

Strength over the past week of the grip of the hand most affected by the subject/participant's stroke

Proposed 1.00 2019-04-04 11:53:50.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C59954 Death cause secondary underlying comorbid reason other text

The free-text field related to 'Death cause secondary underlying comorbid reason', specifying other text.

Supplemental 1.00 2020-08-19 15:46:51.0 Death Form Sickle Cell Disease Sickle Cell Disease
C21499 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest response text

Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C20775 Quality of Life - Sudden panic assessment past week scale

The scale which represents how often the participant had sudden feelings of panic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Supplemental - Highly Recommended 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C59307 Child personal physician explain clearly to child last 6 month frequency scale

Scale for the frequency over the past 6 months that the child's personal physician explained things in a way that was easy for the child to understand

Proposed 1.00 2019-03-29 10:22:22.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59562 Child educational accommodation learn difference other text

The free-text field related to 'Child educational accommodation learn difference code' for describing other accommodations

Proposed 1.00 2019-04-11 14:06:58.0 PhenX Toolkit: Pediatric School Performance Sickle Cell Disease Sickle Cell Disease
C56349 NIH Toolbox Cognitive - Oral reading recognition english age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C19784 Medical history pulmonary bilevel positive airway pressure frequency

Frequency of bilevel positive airway pressure

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C14463 Reflex plantar left response result

The results from reflex plantar response on the left side

Supplemental 1.00 2012-10-05 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C59741 Pour liquid bottle glass difficulty scale

Scale of the difficulty the subject/participant has in pouring liquid from a bottle into a glass

Supplemental 1.00 2019-06-20 11:25:20.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59160 Average seven day fatigue status

Status indicating on average how fatigued the subject/participant felt in the past seven (7) days

Proposed 1.00 2019-01-30 16:55:00.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C59392 Child stroke problem strength coordination right side face body code

Code for the score of the respondent's child's problems with strength or coordination of the right side of the face or body as a result of his or her stroke.

Proposed 1.00 2019-04-03 10:28:55.0 PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C60567 Neurologic disorder preexist new incidence exacerbation follow drug product infusion describe text

Text describing exacerbation or new incidence of a pre-existing neurological disorder following drug product infusion.

Supplemental 1.00 2021-04-23 15:02:28.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C58803 Hemoglobin S measurement date

Date on which the subject/participant's hemoglobin S (HbS) level was measured

Proposed 1.00 2018-12-12 12:32:37.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C59259 Activity with friend difficulty grade

Grade of difficulty doing activities with friends

Proposed 1.00 2019-03-28 11:09:43.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C56299 NIH Toolbox Cognitive - Cognition total composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Total Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56380 Conners Continuous Performance Test 3rd Edition (CPT3) - Inattentiveness omission count

The number of missed targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3)

Proposed 1.00 2017-06-09 15:29:58.0 Conners Continuous Performance Test 3rd Edition (Conners CPT 3) Sickle Cell Disease Sickle Cell Disease
C59701 Get up floor supine position difficulty scale

Scale of the difficulty the subject/participant has in getting up from a supine position on the floor, without help

Supplemental 1.00 2019-06-19 13:58:23.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
Displaying 226 - 250 of 5231