CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60202 Medical history for sickle cell condition blood other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for blood conditions other than Sickle Cell.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60084 Vasoocclusive crisis inpatient admission past 12 month date text

Text field for listing the dates on which the subject/participant was admitted as an inpatient for vasoocclusive crisis (VOC) in the past 12 months.

Core 1.00 2021-01-12 13:51:13.0 Sickle Cell Related Acute Painful Episodes Sickle Cell Disease Sickle Cell Disease
C02203 Off study reason

Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment).

Core 3.00 2013-07-18 16:35:19.49 Death Form Sickle Cell Disease Sickle Cell Disease
C56483 PROMIS - Pain Interference pain interfere ability participate leisure scale

Scale related to how much pain interfered with an individual's ability to participate in leisure activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Core 3.00 2013-07-18 14:26:06.9 Behavioral History Sickle Cell Disease Sickle Cell Disease
C59854 Feel tired past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt tired

Core 1.00 2019-06-24 12:13:02.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Core 3.00 2013-08-28 16:08:00.453 Physical Exam Sickle Cell Disease Sickle Cell Disease
C60523 Gene editing conversion blood CD14 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD14+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59902 Frustrate by too tired do thing want do past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant was frustrated by being too tired to do the things he or she wanted to do

Core 1.00 2019-06-25 11:01:27.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60238 Cardiac MRI left ventricle end diastolic mass body surface area index value

Value in grams per square meter of the end-diastolic mass of the subject/participant's left ventricle, assessed by cardiac MRI, indexed to body surface area (BSA).

Core 1.00 2021-03-02 14:36:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Core 3.00 2013-07-20 10:21:25.65 Behavioral History Sickle Cell Disease Sickle Cell Disease
C59862 Think about own fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days with which the subject/participant thought about his or her own fatigue

Core 1.00 2019-06-24 13:27:11.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58735 Serum creatinine most recent measurement

Measurement of the most recent serum creatinine evaluation.

Core 1.00 2018-12-06 11:59:14.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C60581 Avascular necrosis lesion stage number not record reason

Reason why the stage number for the avascular necrosis legion has not been recorded.

Core 1.00 2021-04-28 14:37:09.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C59850 Feel fatigue beyond control past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt his or her fatigue was beyond his or her control

Core 1.00 2019-06-24 10:09:11.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C02203 Off study reason

Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment).

Core 3.00 2013-07-18 16:35:19.49 Death Form Sickle Cell Disease Sickle Cell Disease
C60531 Gene editing conversion bone marrow colony forming cell percent value

Value of the percentage of gene editing conversions in bone marrow colony forming cells (CFC).

Core 1.00 2021-04-23 11:35:20.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59910 Fatigue on day most fatigued past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt fatigued on the day he or she felt most fatigued

Core 1.00 2019-06-25 11:32:23.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60437 Laboratory procedure hemoglobin C result percentage value

The percentage value related to C variant hemoglobin.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C60246 Cardiac MRI right ventricle end-systolic volume body surface area index value

Value of the subject/participant's right ventricle end-systolic volume (RVESV), assessed by cardiac MRI, indexed to body surface area (BSA) in milliliters per square meter.

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60111 Electronic simulated cigarette ever use frequency category

Category of frequency of use of electronic simulated cigarettes or similar devices by the subject/participant.

Core 1.00 2021-01-14 16:24:33.0 Behavioral History Sickle Cell Disease Sickle Cell Disease
C59870 Difficult start new thing due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant found it difficult to start anything new due to his or her fatigue

Core 1.00 2019-06-24 13:56:27.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60092 Hemoglobin low value

Value of the lowest measurement of the subject/participant's hemoglobin.

Core 1.00 2021-01-14 13:00:29.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60576 Transfusion lifetime total estimate count

Count of the estimated total number of transfusions received by the subject/participant in his or her lifetime.

Core 1.00 2021-04-28 14:21:56.0 Transfusion History Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 5231