CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C21490 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest total raw score

Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Processing Speed Index Subtest of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Sickle Cell Disease Sickle Cell Disease
C55678 PROMIS - Dyspnea Functional limitations stand for 5 minute scale

Scale related to an individual being able to stand for at least 5 minutes, as part of the PROMIS Dyspnea Functional Limitations

Supplemental 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C60502 Polyclonal gene-modified hematopoiesis over 999 unique integration indicator

Indicator of whether >=1000 unique integrations providing evidence of polyclonal gene-modified hematopoiesis were identified in the selected specimen type.

Supplemental 1.00 2021-04-22 14:27:42.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C56566 PROMIS - Life Satisfation satisfy with life scale

Scale related to how satisfied an individual is with his/her life in the past 4 weeks, as part of the PROMIS Life Satisfaction

Proposed 1.00 2017-06-15 12:58:13.0 PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a Sickle Cell Disease Sickle Cell Disease
C54796 PROMIS - Dyspnea severity wash dish scale

Scale related to the individual being able to wash dishes, as part of the PROMIS Dyspnea Severity

Supplemental 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C19781 Medical history asthma pulmonary inhalers use indicator

Indicator of steroid inhalers used for asthma

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59072 Alanine aminotransferase toxicity grade

Grade of alanine aminotransferase (ALT) toxicity exhibited by the patient.

Supplemental 1.00 2019-01-11 13:51:29.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C54712 Epworth Sleepiness Scale Children (ESS-C) - Doze sleep likelihood car passenger code

The code denoting the subect/participant's self-reported likelihood of dozing off or falling asleep while a passenger in a car, as part of the Epworth Sleepiness Scale, Children's version (ESS-C)

Supplemental 1.00 2017-04-10 11:48:33.0 Epworth Sleepiness Scale (ESS) - Children?s Version Sickle Cell Disease Sickle Cell Disease
C56289 NIH Toolbox Cognitive - Cognition early childhood composite raw score

The raw score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:50:27.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C54606 Brief Test of Executive Function Second Edition (BRIEF 2) - Inhibit total raw scale score

Total score of the raw scale for the inhibit function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Proposed 1.00 2017-03-22 09:57:02.0 Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) Sickle Cell Disease Sickle Cell Disease
C60462 Cytogenetic abnormality type other text

The free-text field related to "Cytogenetic abnormality type", specifying other text.

Supplemental 1.00 2021-04-22 10:13:49.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59907 Tired feel average past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt tired on average

Core 1.00 2019-06-25 11:25:14.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60420 Partial pressure oxygen value

The value as related to partial pressure of oxygen.

Exploratory 1.00 2021-04-08 01:25:46.0 Adhesion and Viscosity Sickle Cell Disease Sickle Cell Disease
C54692 PROMIS - Global Health carry out social role scale

Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health

Supplemental 1.00 2017-04-07 15:34:25.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C59843 Get in out bathtub health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to get in and out of the bathtub

Supplemental 1.00 2019-06-21 13:59:30.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56320 NIH Toolbox Cognitive - List scoring working memory age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56319 NIH Toolbox Cognitive - List scoring working memory age 7 up computed score

The computed score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C18718 Imaging scanner strength other text

The free-text field related to 'Imaging scanner strength value' specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental 1.00 2014-05-27 13:34:46.0 Silent Cerebral Infarct Sickle Cell Disease Sickle Cell Disease
C60004 Lymphocyte CD4 CD45RA measurement

Measurement of CD4+/CD45RA+ lymphocytes (naive T cells).

Supplemental 1.00 2020-09-02 09:33:19.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C59867 Fatigue make feel think slow past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant's fatigue made him or her feel slowed down in his or her thinking

Core 1.00 2019-06-24 13:47:09.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60242 Cardiac MRI right ventricle ejection fraction value

Value as a percentage of the subject/participant's right ventricle ejection fraction (RVEF) assessed by cardiac MRI.

Core 1.00 2021-03-02 13:39:15.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C58650 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C59004 Lactic acid dehydrogenase most recent measurement date

Date of the most recent measurement of the patient's lactic acid dehydrogenase level.

Proposed 1.00 2019-01-07 14:43:47.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C20764 Patient-Reported Outcome Measurement Information System (PROMIS) - Nervousness fear assessment past week scale

The scale which represents how often the participant was scared when he/she felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C56296 NIH Toolbox Cognitive - Cognition total composition computed score

The total composite computed score for the Cognition field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:59:58.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 5231