CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 301 - 325 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60318 Echocardiogram mitral diastolic inflow velocity peak E rate

Rate in centimeters per second (cm/s) of the peak E velocity of mitral inflow during diastole.

Core 1.00 2021-03-05 13:07:11.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C59925 Difficult organize thought do thing home due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant found it difficult to organize his or her thoughts while doing things at home due to his or her fatigue

Core 1.00 2019-06-26 10:31:44.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60198 Medical history for sickle cell condition liver other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for liver conditions.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C59885 Too tired leave house past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to leave the house

Core 1.00 2019-06-25 09:56:35.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56494 PROMIS - Pain Interference pain feel burden scale

Scale related to how much pain felt like a burden to an individual in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C59933 Fatigue interfere social activity past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her social activities

Core 1.00 2019-06-26 10:54:08.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60206 Medical history for sickle cell condition other disease ailment other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for other diseases or ailments..

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C59893 Feel listless past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt listless

Core 1.00 2019-06-25 10:38:21.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56502 PROMIS - Pain Interference irritable because pain scale

Scale related to how irritable an individual felt because of pain in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60519 Gene editing conversion blood CD3 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58694 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level torso past 7 day scale

Scale over the past 7 days of the subject/participant's pain level in his or her torso, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C60234 Cardiac MRI left ventricle end-systolic volume body surface area index value

Value of the subject/participant's left ventricle end-systolic volume (LVESV), assessed by cardiac MRI, indexed to body surface area (BSA) in milliliters per square meter.

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60577 Avascular necrosis before cure indicator

Indicator of whether participant/subject presented with avascular necrosis prior to being cured.

Core 1.00 2021-04-28 14:25:43.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Core 3.00 2013-07-25 08:54:08.2 Physical Exam Sickle Cell Disease Sickle Cell Disease
C60527 Gene editing blood GPA plus lineage on target indel count

Count of gene-editing on-target indels in the blood GPA+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Core 3.00 2013-07-25 08:54:08.2 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60242 Cardiac MRI right ventricle ejection fraction value

Value as a percentage of the subject/participant's right ventricle ejection fraction (RVEF) assessed by cardiac MRI.

Core 1.00 2021-03-02 13:39:15.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C00719 Tobacco product used type

Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Core 3.00 2013-07-20 10:21:25.65 Behavioral History Sickle Cell Disease Sickle Cell Disease
C59206 Urinary albumin measurement

Measurement of the concentration of urinary albumin

Core 1.00 2019-03-27 11:52:56.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60585 Fertility preservation no reason

Reason given by the subject/participant for why he or she did not take steps to preserve his or her fertility.

Core 1.00 2021-04-28 14:52:44.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60631 Elapsed time from infusion at visit category

Category of elapsed time since infusion as of the visit being documented.

Core 1.00 2021-04-29 16:11:55.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60441 Laboratory procedure hemoglobin genetic modified A variant result percentage value

The percentage value related to genetic modified A variant hemoglobin.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C60115 Spleen size physical examination indicator

Indicator of whether the size of the subject/participant's spleen was evaluated by physical examination.

Core 1.00 2021-01-14 16:50:52.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
Displaying 301 - 325 of 5231