CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 301 - 325 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60527 Gene editing blood GPA plus lineage on target indel count

Count of gene-editing on-target indels in the blood GPA+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59687 Exercise 1 hour difficulty scale

Scale of the difficulty the subject/participant has in exercising for one hour

Supplemental 1.00 2019-06-19 12:55:46.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56578 PROMIS - Meaning and Purpose reason for living scale

Scale related to an individual feeling as if he/she has a reason for living, as part of the PROMIS Meaning and Purpose

Proposed 1.00 2017-06-15 13:57:59.0 PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a Sickle Cell Disease Sickle Cell Disease
C56299 NIH Toolbox Cognitive - Cognition total composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Total Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C58754 Liver biopsy performed indicate code

Code indicating whether a liver biopsy was performed.

Proposed 1.00 2018-12-10 12:48:47.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C56430 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value

The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Proposed 1.00 2017-06-12 12:05:57.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C60374 Proteinuria indicator

Indicator of whether protein is present in the subject/participant's urine.

Supplemental - Highly Recommended 1.00 2021-03-31 13:16:30.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C55696 PROMIS - Dyspnea Functional limitations sing hum scale

Scale related to an individual being able to sing or hum, as part of the PROMIS Dyspnea Functional Limitations

Supplemental 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C55778 Imaging inter peri ictal next headache start duration

The duration of time until the start of the subject's next inter-ictal or peri-ictal headache.

Supplemental ? Highly Recommended 1.00 2017-05-31 12:23:34.0 Functional Magnetic Resonance Imaging (fMRI) Sickle Cell Disease Sickle Cell Disease
C56342 NIH Toolbox Cognitive - Picture sequence memory age 3 up computed score

The computed score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:05:50.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C19167 Special care unit type

Type of special care unit

Supplemental 1.00 2014-05-29 14:04:21.0 Selected Debaun CDEs Sickle Cell Disease Sickle Cell Disease
C60004 Lymphocyte CD4 CD45RA measurement

Measurement of CD4+/CD45RA+ lymphocytes (naive T cells).

Supplemental 1.00 2020-09-02 09:33:19.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C60242 Cardiac MRI right ventricle ejection fraction value

Value as a percentage of the subject/participant's right ventricle ejection fraction (RVEF) assessed by cardiac MRI.

Core 1.00 2021-03-02 13:39:15.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C20844 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale

The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C60706 Adverse event relate apheresis indicator

The indicator related to adverse event from apheresis.

Exploratory 1.00 2021-05-10 12:12:04.0 Apheresis Sickle Cell Disease Sickle Cell Disease
C18714 Imaging radio frequency coil channel other text

The free-text field related to 'Imaging radio frequency coil channel count' specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental 1.00 2014-05-27 13:34:46.0 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C56393 Conners Continuous Performance Test 3rd Edition (CPT3) - Sustained attention omission block count

The number of missed targets by block, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Supplemental 1.00 2017-06-09 15:42:50.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C59617 Red cell distribution width percent value

Value indicating the amount of red blood cell variation in volume and size (in percent).

Proposed 1.00 2019-04-15 16:35:04.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C58713 Focal neurological event information not available specify text

Text field for specifying why information about a focal neurological event was not available.

Proposed 1.00 2018-12-06 09:36:32.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C19834 Psychiatric depression onset date

Date of onset of depression first

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59206 Urinary albumin measurement

Measurement of the concentration of urinary albumin

Core 1.00 2019-03-27 11:52:56.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C59442 Feel nothing look forward to past week frequency scale

Scale of the frequency that the subject/participant felt over the past week that he or she has nothing to look forward to

Proposed 1.00 2019-04-04 12:48:29.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C59964 Polymorphonuclear leukocyte not tested status

Status indicating that the subject/participant's polymorphonuclear leukocytes (PMN) were not tested.

Supplemental 1.00 2020-09-01 13:50:15.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C59320 Use health plan customer service last 6 month indicate code

Code indicating whether attempts were made to use customer service at the subject/participant's health plan in the last 6 months

Proposed 1.00 2019-04-01 10:38:36.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C54604 Informant participant relationship duration

Duration for which the informant has known the subject/participant

Supplemental 1.00 2017-03-22 09:46:35.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
Displaying 301 - 325 of 5231