CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59939 Feel weak all over past 7 day extent scale

Scale of the extent over the past 7 days to which the subject/participant felt weak all over

Core 1.00 2019-06-26 11:29:58.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60492 Integrating viral vector copy number bone marrow colony forming cell value

Value of the integrating viral vector copy number (VCN) in bone marrow for colony forming cells (CFC).

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60134 Erythropoietin measured indicator

Indicator of whether the subject/participant's erythropoietin (EPO) level was measured.

Core 1.00 2021-01-15 13:21:31.0 Chronic Anemia Sickle Cell Disease Sickle Cell Disease
C60230 Cardiac MRI left ventricle ejection fraction value

Value as a percentage of the subject/participant's left ventricle ejection fraction (LVEF) assessed by cardiac MRI.

Core 1.00 2021-03-02 13:39:15.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Core 3.00 2013-07-18 14:26:06.9 Behavioral History Sickle Cell Disease Sickle Cell Disease
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Core 3.00 2013-08-28 16:08:00.453 Physical Exam Sickle Cell Disease Sickle Cell Disease
C60523 Gene editing conversion blood CD14 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD14+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60238 Cardiac MRI left ventricle end diastolic mass body surface area index value

Value in grams per square meter of the end-diastolic mass of the subject/participant's left ventricle, assessed by cardiac MRI, indexed to body surface area (BSA).

Core 1.00 2021-03-02 14:36:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Core 3.00 2013-07-20 10:21:25.65 Behavioral History Sickle Cell Disease Sickle Cell Disease
C58735 Serum creatinine most recent measurement

Measurement of the most recent serum creatinine evaluation.

Core 1.00 2018-12-06 11:59:14.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C60581 Avascular necrosis lesion stage number not record reason

Reason why the stage number for the avascular necrosis legion has not been recorded.

Core 1.00 2021-04-28 14:37:09.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60531 Gene editing conversion bone marrow colony forming cell percent value

Value of the percentage of gene editing conversions in bone marrow colony forming cells (CFC).

Core 1.00 2021-04-23 11:35:20.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60437 Laboratory procedure hemoglobin C result percentage value

The percentage value related to C variant hemoglobin.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C60246 Cardiac MRI right ventricle end-systolic volume body surface area index value

Value of the subject/participant's right ventricle end-systolic volume (RVESV), assessed by cardiac MRI, indexed to body surface area (BSA) in milliliters per square meter.

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60111 Electronic simulated cigarette ever use frequency category

Category of frequency of use of electronic simulated cigarettes or similar devices by the subject/participant.

Core 1.00 2021-01-14 16:24:33.0 Behavioral History Sickle Cell Disease Sickle Cell Disease
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60092 Hemoglobin low value

Value of the lowest measurement of the subject/participant's hemoglobin.

Core 1.00 2021-01-14 13:00:29.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60576 Transfusion lifetime total estimate count

Count of the estimated total number of transfusions received by the subject/participant in his or her lifetime.

Core 1.00 2021-04-28 14:21:56.0 Transfusion History Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C00035 Gender Type

Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.

Core 3.00 2013-08-28 16:08:00.453 Demographics Sickle Cell Disease Sickle Cell Disease
C60589 Hydroxyurea stop duration

Duration of time in months for which the subject/participant's hydroxyurea treatment has been stopped.

Core 1.00 2021-04-28 15:06:07.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60607 Priapism erection duration text

Text field for capturing the value and units of the duration of erection reported by the subject/participant.

Core 1.00 2021-04-29 13:27:59.0 Priapism Core Sickle Cell Disease Sickle Cell Disease
C60635 Tissue monitoring type

Type of tissue sampled for monitoring

Core 1.00 2021-04-29 16:24:47.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60119 Splenic sequestration abdominal pain indicator

Indicator of whether the subject/participant experienced abdominal pain during splenic sequestration episodes.

Core 1.00 2021-01-15 09:55:36.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 5231