CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C20375 Pittsburgh Sleep Quality Index (PSQI) - Total score

The total score, as part of the Pittsburgh Sleep Quality Index (PSQI).

Supplemental 1.00 2015-03-11 11:17:32.0 Pittsburgh Sleep Quality Index (PSQI) Sickle Cell Disease Sickle Cell Disease
C60473 Bone marrow aspirate perform indicator

Indicator of whether any bone marrow aspiration was performed.

Supplemental 1.00 2021-04-22 12:00:51.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C54712 Epworth Sleepiness Scale Children (ESS-C) - Doze sleep likelihood car passenger code

The code denoting the subect/participant's self-reported likelihood of dozing off or falling asleep while a passenger in a car, as part of the Epworth Sleepiness Scale, Children's version (ESS-C)

Supplemental 1.00 2017-04-10 11:48:33.0 Epworth Sleepiness Scale (ESS) - Children?s Version Sickle Cell Disease Sickle Cell Disease
C56409 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities raw score

The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Supplemental 1.00 2017-06-12 11:23:35.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C20734 Patient-Reported Outcome Measurement Information System (PROMIS) - No reason upset assessment past week scale

The scale which represents how often the participant felt upset for no reason in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C60687 Chronic red cell exchange program past year indicator

The indicator related to participant being part of an chronic red cell exchange program in the past year.

Exploratory 1.00 2021-05-10 12:12:04.0 Apheresis Sickle Cell Disease Sickle Cell Disease
C54812 PROMIS - Dyspnea severity put on sock stocking scale

Scale related to the individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Severity

Supplemental 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C57965 Laboratory procedure percent lymphocytes value

Value of percent lymphocytes.

Proposed 1.00 2018-01-22 11:03:02.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C58064 Skin jaundice assessment status

The status of skin jaundice assessment in physical examination.

Supplemental 1.00 2018-01-23 12:29:34.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59853 Physically drained past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt physically drained

Core 1.00 2019-06-24 12:10:36.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56316 NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental - Highly Recommended 1.00 2017-06-09 10:32:43.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C20793 Quality of Life - Tension assessment past week scale

The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Supplemental - Highly Recommended 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C60322 Echocardiogram left ventricle size qualitative status

Status indicating the qualitative size assessment of the subject/participant's left ventricle from an echocardiogram.

Supplemental 1.00 2021-03-02 13:11:19.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C59417 Height without shoes status

Status indicating whether subject/participant did not know height or refused measurement.

Proposed 1.00 2019-04-03 16:22:47.0 PhenX Toolkit: Height - Self-Reported Height Sickle Cell Disease Sickle Cell Disease
C60431 Imaging repetition duration

Duration (in milliseconds) of the repetition time (TR) used in imaging acquisition.

Supplemental 1.00 2021-04-08 15:07:14.0 Silent Cerebral Infarct Sickle Cell Disease Sickle Cell Disease
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C20814 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep problem assessment past week scale

The scale which represents how often the participant had a problem with sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C60178 Hospital admission indicator

Indicator of whether the subject/participant was admitted to a hospital.

Supplemental 1.00 2021-02-23 17:35:43.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C59297 Child see personal physician last 6 month count range

Range of the count of times that the child was seen by his or her personal physician in the last 6 months

Proposed 1.00 2019-03-29 10:12:59.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59609 Monocyte count

Count indicating monocyte (1000 cells/uL) during complete blood count panel test

Exploratory 1.00 2019-04-15 16:21:50.0 Adhesion and Viscosity Sickle Cell Disease Sickle Cell Disease
C59556 Age pediatric year part value

Value of the year part of the pediatric subject/participant's age

Proposed 1.00 2019-04-11 13:47:49.0 PhenX Toolkit: Pediatric School Performance Sickle Cell Disease Sickle Cell Disease
C56348 NIH Toolbox Cognitive - Oral reading recognition english age 7 up computed score

The computed score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C19769 Medical history pulmonary aspiration diagnosis indicator

Indicator of history of aspiration

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C58770 Infection uncontrolled bacterial viral fungal 6 week prior enrollment indicate code

Code indicating whether the subject/participant had an uncontrolled bacterial, viral, or fungal infection in the 6 weeks prior to his or her enrollment in the study.

Proposed 1.00 2018-12-10 16:05:10.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C60070 Growth hormone deficiency prominent indicator

Indicator of whether the growth hormone deficiency the subject/participant presents with is a prominent clinical feature.

Supplemental 1.00 2020-09-03 15:35:46.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 5231