|
C56304 |
NIH Toolbox Cognitive - Picture vocabulary age 3 up age adjusted scale score |
The age adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:18:31.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56314 |
NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up age adjusted scale score |
The age adjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:45:09.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56303 |
NIH Toolbox Cognitive - Picture vocabulary age 3 up unadjusted scale score |
The unadjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:07:56.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56346 |
NIH Toolbox Cognitive - Picture sequence memory age 3 up fully adjusted scale score |
The fully adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:05:50.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20793 |
Quality of Life - Tension assessment past week scale |
The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.
|
Supplemental - Highly Recommended |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58644 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56340 |
NIH Toolbox Cognitive - Picture sequence memory age 3 up raw score |
The raw score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:05:50.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56330 |
NIH Toolbox Cognitive - Dimensional change card sort age 3 up fully adjusted scale score |
The fully adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:36:24.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56291 |
NIH Toolbox Cognitive - Cognition early childhood composite unadjusted scale score |
The unadjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:52:47.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20836 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale |
The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Supplemental - Highly Recommended |
1.00 |
2015-05-21 08:50:35.0 |
PROMIS Item Bank v1.0 - Sleep Disturbance |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56349 |
NIH Toolbox Cognitive - Oral reading recognition english age 7 up unadjusted scale score |
The unadjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:52:47.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56342 |
NIH Toolbox Cognitive - Picture sequence memory age 3 up computed score |
The computed score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:05:50.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56299 |
NIH Toolbox Cognitive - Cognition total composite national age adjusted percentage value |
The national percentile (age adjusted) that the subject is in, with respect to the Cognition Total Composite field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:39:34.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20697 |
Quality of Life - Hope loss assessment past week scale |
The scale which represents how often the participant wanted to give up on everything in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.
|
Supplemental - Highly Recommended |
1.00 |
2015-05-20 14:29:32.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Depression |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56350 |
NIH Toolbox Cognitive - Oral reading recognition english age 7 up age adjusted scale score |
The age adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:52:47.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56309 |
NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up raw score |
The raw score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:36:24.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56300 |
NIH Toolbox Cognitive - Cognition total composite fully adjusted scale score |
The total composite fully adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:56:45.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56343 |
NIH Toolbox Cognitive - Picture sequence memory age 3 up unadjusted scale score |
The unadjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:05:50.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20727 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Decision trouble assessment past week scale |
The scale which represents how often the participant had trouble making decisions in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Supplemental - Highly Recommended |
1.00 |
2015-05-20 14:29:32.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Depression |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20807 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep deepness assessment past week scale |
The scale which represents how often the participant's sleep was deep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Supplemental - Highly Recommended |
1.00 |
2015-05-21 08:50:35.0 |
PROMIS Item Bank v1.0 - Sleep Disturbance |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56320 |
NIH Toolbox Cognitive - List scoring working memory age 7 up unadjusted scale score |
The unadjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:52:47.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56311 |
NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up computed score |
The computed score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:38:49.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56351 |
NIH Toolbox Cognitive - Oral reading recognition english age 7 up national age adjusted percentage value |
The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:39:34.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20735 |
Quality of Life - Nothing interest assessment past week scale |
The scale which represents how often the participant felt that nothing was interesting in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.
|
Supplemental - Highly Recommended |
1.00 |
2015-05-20 14:29:32.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Depression |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20815 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale |
The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Supplemental - Highly Recommended |
1.00 |
2015-05-21 08:50:35.0 |
PROMIS Item Bank v1.0 - Sleep Disturbance |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
