C58582 |
Genetic typing method code |
Code for the type of method used for genetic typing.
|
Proposed |
1.00 |
2018-10-23 11:52:51.0 |
HLA Form - 1507 |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58585 |
Blood marrow transplant donor type code |
Code for the type of donor being considered for blood or marrow transplant.
|
Proposed |
1.00 |
2018-10-23 12:07:12.0 |
HLA Form - 1507 |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58730 |
Cardiac fraction test type code |
Code for the type of cardiac fraction test performed.
|
Proposed |
1.00 |
2018-12-06 11:37:18.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58664 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis last occur time elapse code |
Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Core |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58664 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis last occur time elapse code |
Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58584 |
Human leukocyte antigen typing allele 2 code |
Code for the second allele reported for the specified gene locus using the specified human leukocyte antigen (HLA) typing method.
|
Proposed |
1.00 |
2018-10-23 12:00:40.0 |
HLA Form - 1507 |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59392 |
Child stroke problem strength coordination right side face body code |
Code for the score of the respondent's child's problems with strength or coordination of the right side of the face or body as a result of his or her stroke.
|
Proposed |
1.00 |
2019-04-03 10:28:55.0 |
PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59393 |
Child stroke problem strength coordination left side face body code |
Code for the score of the respondent's child's problems with strength or coordination of the left side of the face or body as a result of his or her stroke.
|
Proposed |
1.00 |
2019-04-03 10:28:55.0 |
PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59394 |
Child stroke problem verbal expression score code |
Code for the score of the respondent's child's problem with verbal expression as a result of his or her stroke
|
Proposed |
1.00 |
2019-04-03 10:42:49.0 |
PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59396 |
Child stroke problem verbal comprehension score code |
Code for the score of the respondent's child's problem with verbal comprehension as a result of his or her stroke
|
Proposed |
1.00 |
2019-04-03 10:42:49.0 |
PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59398 |
Child stroke problem thinking behavior score code |
Code for the score of the respondent's child's problem with thinking or behavior as a result of his or her stroke
|
Proposed |
1.00 |
2019-04-03 10:42:49.0 |
PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58728 |
Performance status scale code |
Code for the scale used to evaluate the subject/participant's performance status.
|
Proposed |
1.00 |
2018-12-06 11:18:08.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58729 |
Performance status result code |
Code for the result of the subject/participant's performance status using the Karnofsky or Lansky performance status scale.
|
Proposed |
1.00 |
2018-12-06 11:24:22.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59095 |
Liver biopsy other etiology result code |
Code for the result of the liver biopsy performed for other etiology.
|
Proposed |
1.00 |
2019-01-04 14:12:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59095 |
Liver biopsy other etiology result code |
Code for the result of the liver biopsy performed for other etiology.
|
Supplemental |
1.00 |
2019-01-04 14:12:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59094 |
Liver biopsy infection result code |
Code for the result of the liver biopsy performed for infection.
|
Proposed |
1.00 |
2019-01-04 14:12:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59094 |
Liver biopsy infection result code |
Code for the result of the liver biopsy performed for infection.
|
Supplemental |
1.00 |
2019-01-04 14:12:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59093 |
Liver biopsy VOD result code |
Code for the result of the liver biopsy performed for hepatic veno-occlusive disease (VOD).
|
Proposed |
1.00 |
2019-01-04 14:12:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59093 |
Liver biopsy VOD result code |
Code for the result of the liver biopsy performed for hepatic veno-occlusive disease (VOD).
|
Supplemental |
1.00 |
2019-01-04 14:12:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58976 |
Liver biopsy GVHD result code |
Code for the result of the liver biopsy performed for graft-versus-host disease (GVHD)
|
Proposed |
1.00 |
2019-01-04 14:12:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58976 |
Liver biopsy GVHD result code |
Code for the result of the liver biopsy performed for graft-versus-host disease (GVHD)
|
Supplemental |
1.00 |
2019-01-04 14:12:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59349 |
Respondent relation patient code |
Code for the relationship to the patient of the individual answering the questionnaire.
|
Proposed |
1.00 |
2019-04-01 13:45:19.0 |
PhenX Toolkit: Quality of Care - Children |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59563 |
Residence US years code |
Code for the number of years the respondent has lived in the US
|
Proposed |
1.00 |
2019-04-11 14:23:18.0 |
PhenX Toolkit: Years Living in the U.S. |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59348 |
Respondent education code |
Code for the highest level of education of the individual answering the questionnaire.
|
Proposed |
1.00 |
2019-04-01 13:39:41.0 |
PhenX Toolkit: Quality of Care - Children |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59347 |
Respondent gender code |
Code for the gender of the individual answering the questionnaire.
|
Proposed |
1.00 |
2019-04-01 13:36:13.0 |
PhenX Toolkit: Quality of Care - Children |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|