CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 76 - 100 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58627 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form Sickle Cell Disease Sickle Cell Disease
C58627 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58627 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58632 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Extra time arise because stiff past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant needed extra time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58670 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficult past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had difficulty falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58670 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficult past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had difficulty falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58670 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficult past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had difficulty falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58700 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficulty past 7 day scale

Scale for the difficulty over the past 7 days that the subject/participant had falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58669 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep easy past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant easily fell asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58669 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep easy past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant easily fell asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58669 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep easy past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant easily fell asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58699 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep want stay awake past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant fell asleep when he or she wanted to stay awake, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58616 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Family consider subject burden past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant's family considered him or her to be a burden, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58625 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Family worry health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's family worried about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58673 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel alone because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58683 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel different others because health past 7 day scale

Scale for the degree to which the subject/participant felt different from others over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58684 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel good about health past 7 day scale

Scale for the degree to which the subject/participant felt good over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58681 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeful health past 7 day scale

Scale for the degree of hopefulness the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58644 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58644 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58644 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58685 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel sad because health past 7 day scale

Scale for the degree to which the subject/participant felt sad over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58678 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel sickle cell take life any moment past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt that sickle cell disease could take his or her life at any moment, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58687 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health bother past 7 day scale

Scale for the degree to which the subject/participant was bothered over the past 7 days by his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58626 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health hurt social life past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's health hurt his or her social life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
Displaying 76 - 100 of 5231