CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 76 - 100 of 5231
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60679 Nuclease delivery mode other text

The free-text field to capture other speicfy for mode of nuclease delivery

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C60142 Blood sample collect indicator

Indicator of whether a sample of the subject/participant's blood was collected.

Core 1.00 2021-01-15 16:26:53.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60162 Heart rate maximum day of diagnosis rate

Rate of the subject/participant's maximum pulse/heart rate in beats per minute on the day of his or her diagnosis.

Core 1.00 2021-02-23 16:23:22.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C00035 Gender Type

Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.

Core 3.00 2013-08-28 16:08:00.453 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60150 Test not done reason

Reason why the test was not performed.

Core 1.00 2021-01-19 10:26:40.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60629 Liver biopsy iron result text

Text field for reporting the result of the laboratory iron test for liver biopsy.

Core 1.00 2021-04-29 14:59:31.0 Iron Overload Sickle Cell Disease Sickle Cell Disease
C60314 Echocardiogram right atrium volume body surface area index value

Value in milliliters per square meter of the volume of the right atrium (RA), assessed by echocardiogram, divided by the subject/participant's body surface area.

Core 1.00 2021-03-04 13:48:28.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C10740 Echocardiogram left ventricle ejection fraction measurement

Fraction of blood pumped out of the left ventricles with each heart beat measured with echocardiography

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60194 Medical history for sickle cell condition type

Type of condition of which the sickle-cell subject/participant has a past or ongoing medical history.

Core 1.00 2021-02-24 12:58:20.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C12900 Echocardiogram left ventricle end systolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole.

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60202 Medical history for sickle cell condition blood other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for blood conditions other than Sickle Cell.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60134 Erythropoietin measured indicator

Indicator of whether the subject/participant's erythropoietin (EPO) level was measured.

Core 1.00 2021-01-15 13:21:31.0 Chronic Anemia Sickle Cell Disease Sickle Cell Disease
C59912 Feel run down past 7 day average scale

Scale of how run down the subject/participant felt on average over the past 7 days

Core 1.00 2019-06-26 09:53:36.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56516 PROMIS - Pain Interference pain prevent sit 10 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 10 minutes in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60230 Cardiac MRI left ventricle ejection fraction value

Value as a percentage of the subject/participant's left ventricle ejection fraction (LVEF) assessed by cardiac MRI.

Core 1.00 2021-03-02 13:39:15.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Core 3.00 2013-07-18 14:26:06.9 Behavioral History Sickle Cell Disease Sickle Cell Disease
C59872 Too tired run errand past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant has been too tired to run errands

Core 1.00 2019-06-24 14:04:28.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Core 3.00 2013-08-28 16:08:00.453 Physical Exam Sickle Cell Disease Sickle Cell Disease
C60523 Gene editing conversion blood CD14 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD14+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59920 Push self get thing done due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant had to push him or herself to get things done due to his or her fatigue

Core 1.00 2019-06-26 10:11:54.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60238 Cardiac MRI left ventricle end diastolic mass body surface area index value

Value in grams per square meter of the end-diastolic mass of the subject/participant's left ventricle, assessed by cardiac MRI, indexed to body surface area (BSA).

Core 1.00 2021-03-02 14:36:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C58666 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code

Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Core 3.00 2013-07-20 10:21:25.65 Behavioral History Sickle Cell Disease Sickle Cell Disease
C58735 Serum creatinine most recent measurement

Measurement of the most recent serum creatinine evaluation.

Core 1.00 2018-12-06 11:59:14.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C59880 Too tired take bath shower past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to take a bath or shower

Core 1.00 2019-06-25 09:40:05.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 76 - 100 of 5231