CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 76 - 100 of 5231
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

Supplemental 3.00 2013-07-18 16:35:19.49 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C14683 Pediatric Migraine Disability Assessment (MIDAS) - headache decrease other activity function day count

Count the days you participate in these activities, but functioned at less than half your ability, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Proposed 3.00 2013-07-16 14:01:43.01 Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) Sickle Cell Disease Sickle Cell Disease
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental 3.00 2013-07-24 11:38:01.2 Selected Debaun CDEs Sickle Cell Disease Sickle Cell Disease
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental 3.00 2013-07-24 11:38:01.2 Serious Adverse Events Sickle Cell Disease Sickle Cell Disease
C18899 Imaging brain death vessel anatomic other text

The free-text field related to 'Imaging brain death vessel anatomic site' specifying other text. Indicates brain death vessel(s)

Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C13881 Digital Subtraction Angiography (DSA) injection site anatomic site

The site of injection for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment.

Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C18022 Data point exceed safety parameter description text

Description specifying how the data points that exceeded the safety parameters were handled statistically

Supplemental 3.00 2013-07-16 14:01:43.01 Quantitative Sensory Testing (QST) Sickle Cell Disease Sickle Cell Disease
C13894 Imaging vessel angiography overall assessment type

Indicates vessel angiography overall assessment

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Angiography Sickle Cell Disease Sickle Cell Disease
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively.

Supplemental 3.00 2013-07-25 08:54:08.2 Selected Debaun CDEs Sickle Cell Disease Sickle Cell Disease
C14682 Pediatric Migraine Disability Assessment (MIDAS) - headache cease other activity function day count

Count the days you were not able to participate in other activities due to headaches (i.e., play, go out, sports, etc.), as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Supplemental 3.00 2013-07-16 14:01:43.01 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C14116 Learning disability or attention deficit diagnosis indicator

Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)

Proposed 3.00 2013-08-28 16:08:00.453 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C12898 Echocardiogram left ventricle end diastolic volume index measurement

Calculated from end diastolic volume over body surface area - left ventricle

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C12488 Imaging subcortical cyst indicator

Indicator of whether subcortical cysts are found in the image studies

Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C12454 Polysomnography transcutaneous carbon dioxide measured indicator

Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported

Supplemental 3.00 2013-07-24 11:38:01.2 Polysomnography Sickle Cell Disease Sickle Cell Disease
C20416 National Institutes of Health Stroke Scale (NIHSS) - Motor arm amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS).

Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C59499 Pediatric National Institutes of Health Stroke Scale (PedNIHSS) - Motor arm score

Motor ability of the arm (both left and right) assessed using the Pediatric NIH Stroke Scale (PedNIHSS)

Proposed 3.00 2013-06-21 00:00:00.0 PhenX Toolkit: Stroke Impact/Outcome - Pediatric Sickle Cell Disease Sickle Cell Disease
C12484 Imaging cortex-polymicrogyria site type

The type of anatomical site(s) of the cortex-polymicrogyria

Supplemental ? Highly Recommended 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C14014 Intracranial stenosis other criteria result

Other criteria for intracranial stenosis

Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C13242 National Institutes of Health Stroke Scale (NIHSS) - Best language score

Language ability assessed using the NIH Stroke Scale (NIHSS)

Supplemental 3.00 2013-06-21 00:00:00.0 NIH Stroke Scale (NIHSS) Sickle Cell Disease Sickle Cell Disease
C18888 Imaging acquisition reason other text

The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed

Supplemental 3.00 2013-06-21 00:00:00.0 Vessel Imaging Transcranial Doppler (TCD) Sickle Cell Disease Sickle Cell Disease
C12478 Imaging cortex-pachygyria indicator

Indicator of whether cortex-pachygyria are found within the image studies

Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C13925 Imaging vertebral interosseous result

Indicates vertebral interosseous

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Carotid Ultrasound Sickle Cell Disease Sickle Cell Disease
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

Supplemental 3.00 2013-07-25 08:54:08.2 Demographics Sickle Cell Disease Sickle Cell Disease
C13936 Intima media thickness (IMT) artery type

Indicates intima media thickness (IMT) artery for diameter

Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
Displaying 76 - 100 of 5231