CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59891 Force self do thing due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had to force him or herself to do things due to his or her fatigue

Core 1.00 2019-06-25 10:13:12.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Core 3.00 2013-07-18 14:26:06.9 Behavioral History Sickle Cell Disease Sickle Cell Disease
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C54689 PROMIS - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C60209 Medical history for sickle cell condition diagnosis year date

Year part of the date of diagnosis of the subject/participant's condition selected in "Medical history for sickle cell condition type".

Core 1.00 2021-02-24 15:43:24.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C56490 PROMIS - Pain Interference pain interfere with family life scale

Scale related to how much pain interfered with an individual's family life in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60085 Vasoocclusive crisis inpatient admission past 12 month duration text

Text field for recording the duration of each inpatient admission subject/participant had for vasoocclusive crisis (VOC) in the past 12 months.

Core 1.00 2021-01-12 13:51:13.0 Sickle Cell Related Acute Painful Episodes Sickle Cell Disease Sickle Cell Disease
C60297 Echocardiogram left ventricle ejection fraction visual estimate value

Fraction of blood pumped out of the left ventricles with each heart beat estimated visually using echocardiography

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60678 Nuclease delivery mode type

The type related to mode of nuclease delivery

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C58666 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code

Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C56498 PROMIS - Pain Interference pain interfere ability make trip from home scale

Scale related to how much pain interfered with an individual's ability to make trips from home that kept him/her gone for more than 2 hours in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60161 Temperature maximum day of diagnosis unit of measure

Unit of measurement of the subject/participant's maximum temperature on the day of his or her diagnosis.

Core 1.00 2021-02-23 16:19:44.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core 3.00 2013-07-25 08:54:08.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C58650 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C60149 Blood gas sample collect indicator

Indicator of whether a blood gas sample was collected.

Core 1.00 2021-01-19 09:43:19.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C59941 Level of fatigue most days past 7 day scale

Scale over the past 7 days of the subject/participant's level of fatigue on most days

Core 1.00 2019-06-26 11:34:43.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60628 Imaging MRI liver iron content detemination method type

Type of method used for determination of liver iron content (LIC) in magnetic resonance imaging (MRI).

Core 1.00 2021-04-29 14:54:01.0 Iron Overload Sickle Cell Disease Sickle Cell Disease
C56506 PROMIS - Pain Interference pain keep from socialize other scale

Scale related to how often pain kept an individual from socializing with others in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60313 Echocardiogram right atrium volume measurement

Measurement in milliliters of the volume of the right atrium (RA), assessed by echocardiogram.

Core 1.00 2021-03-04 13:48:28.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C58688 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain free total past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was totally pain free, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C18027 Comment text

Provide any additional information that pertains to the question.

Core 3.00 2013-07-16 14:01:43.01 Medical History Core Sickle Cell Disease Sickle Cell Disease
C56514 PROMIS - Pain Interference pain prevent stand 30 minute more scale

Scale related to how often pain prevented an individual from standing for more than 30 minutes in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60321 Echocardiogram lateral diastolic velocity e prime rate

Rate in centimeters per second (cm/s) of the lateral e-prime (e') velocity during diastole.

Core 1.00 2021-03-05 13:07:11.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core 3.00 2013-08-28 16:08:00.453 Demographics Sickle Cell Disease Sickle Cell Disease
C12898 Echocardiogram left ventricle end diastolic volume index measurement

Calculated from end diastolic volume over body surface area - left ventricle

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 5231