CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60116 Spleen size physical examination measurement

Measurement of the size of the subject/participant's spleen by physical examination, reported as centimeters below the left costal margin.

Core 1.00 2021-01-14 16:53:52.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60340 Monocyte chemoattractant protein-1 measurement unit of measure

Unit of measure of the measurement of monocyte chemoattractant protein-1 (MCP-1), also known as chemokine ligand 2 (CCL2).

Exploratory 1.00 2021-03-15 15:02:20.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C56393 Conners Continuous Performance Test 3rd Edition (CPT3) - Sustained attention omission block count

The number of missed targets by block, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Supplemental 1.00 2017-06-09 15:42:50.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C58713 Focal neurological event information not available specify text

Text field for specifying why information about a focal neurological event was not available.

Proposed 1.00 2018-12-06 09:36:32.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59874 Fatigue interfere ability engage recreational activity past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant's fatigue interfered with his or her ability to engage in recreational activity

Core 1.00 2019-06-24 14:14:23.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56414 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension T score sum value

The sum of the T scores the subject received on the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental 1.00 2017-06-12 11:35:16.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C20738 Patient-Reported Outcome Measurement Information System (PROMIS) - Guiltiness assessment past week scale

The scale which represents how often the participant felt guilty in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C60097 Lactic acid dehydrogenase measurement unit of measure

Unit of measurement for the measurement of the subject/participant's lactic acid dehydrogenase (LDH)

Core 1.00 2021-01-14 13:17:31.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C54604 Informant participant relationship duration

Duration for which the informant has known the subject/participant

Supplemental 1.00 2017-03-22 09:46:35.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C60654 PROMIS - Pediatric Global Health 7 plus 2 health scale

Scale related to an individual's rating of his/her health, as part of the PROMIS Pediatric Global Health 7+2 questionnaire.

Core 1.00 2017-04-07 15:34:25.0 PROMIS Pediatric Global Health 7+2 Sickle Cell Disease Sickle Cell Disease
C54606 Brief Test of Executive Function Second Edition (BRIEF 2) - Inhibit total raw scale score

Total score of the raw scale for the inhibit function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Proposed 1.00 2017-03-22 09:57:02.0 Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) Sickle Cell Disease Sickle Cell Disease
C58934 Infection administered agent name

Name indicating the agent(s) administered for the infection(s).

Supplemental 1.00 2018-12-24 11:31:56.0 Infection Form - Adapted from BMTCTN 15070 Sickle Cell Disease Sickle Cell Disease
C20818 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale

The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C59987 Lymphocyte absolute count

Absolute count of lymphocytes in cells per microliter (cells per cubic millimeter).

Supplemental 1.00 2020-09-01 17:43:47.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C60594 Fertility preservation oocyte indicator

Indicator of whether oocytes have been preserved for fertility preservation.

Core 1.00 2021-04-28 16:12:45.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60612 Priapism prevention medication prescribe type

Type(s) of medications prescribed for the prevention of priapism.

Core 1.00 2021-04-29 13:41:40.0 Priapism Core Sickle Cell Disease Sickle Cell Disease
C55721 PROMIS - Self Efficacy managing emotions find way to manage stress scale

Scale related to an individual being able to find ways to manage stress, as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C57970 Laboratory procedure hematocrit value

Value of hematocrit.

Proposed 1.00 2018-01-22 11:03:02.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C56343 NIH Toolbox Cognitive - Picture sequence memory age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:05:50.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C60549 Gene editing site translocation on off target droplet digital polymerase chain reaction detection limit text

Text field for capturing the droplet digital polymerase chain reaction (PCR) detection limit for translocations of on target and off target gene editing sites.

Supplemental 1.00 2021-04-23 13:24:46.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59625 Height without shoes inches measurement

Measurement indicating the subject/participant's height without shoes measured in inches.

Proposed 1.00 2019-04-18 16:49:46.0 PhenX Toolkit: Height - Self-Reported Height Sickle Cell Disease Sickle Cell Disease
C56300 NIH Toolbox Cognitive - Cognition total composite fully adjusted scale score

The total composite fully adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:56:45.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59950 Death cause primary intermediate reason

Reason which was the primary or intermediate cause of death of the subject/participant.

Supplemental 1.00 2020-08-19 15:24:48.0 Death Form Sickle Cell Disease Sickle Cell Disease
C60640 Gene editing site specific nuclease indel on target percent value

Value of the percentage of on-target indels in blood for site-specific nuclease gene editing.

Core 1.00 2021-04-30 11:24:37.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C19775 Medical history sleep pulmonary assessment indicator

Indicator of sleep study completed

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 5231