CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 126 - 150 of 4766
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56487 PROMIS - Pain Interference pain interfere with enjoy recreational activity scale

Scale related to how much pain interfered with an individual's enjoyment of recreational activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59936 Have trouble finish thing due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant had trouble finishing things due to his or her fatigue

Core 1.00 2019-06-26 11:01:38.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C12505 Imaging eye abnormality indicator

Indicator of whether eye abnormalities are present

Core 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C60085 Vasoocclusive crisis inpatient admission past 12 month duration text

Text field for recording the duration of each inpatient admission subject/participant had for vasoocclusive crisis (VOC) in the past 12 months.

Core 1.00 2021-01-12 13:51:13.0 Sickle Cell Related Acute Painful Episodes Sickle Cell Disease Sickle Cell Disease
C60297 Echocardiogram left ventricle ejection fraction visual estimate value

Fraction of blood pumped out of the left ventricles with each heart beat estimated visually using echocardiography

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C10685 Imaging slice orientation type

The slice orientation used in imaging acquisition

Core 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C59930 More forgetful due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant was more forgetful due to his or her fatigue

Core 1.00 2019-06-26 10:46:25.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59890 Too tired go short walk past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to go for a short walk

Core 1.00 2019-06-25 10:11:07.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56495 PROMIS - Pain Interference pain interfere with work around home scale

Scale related to how much pain interfered with work around the home in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Core 1.00 2013-09-12 00:00:00.0 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C01541 Weight measurement

Measurement of participant's/subject's weight

Core 3.00 2013-07-25 08:54:08.2 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59968 Platelet count value

Value of the count of platelets in the subject/participant's complete blood cell (CBC) sample.

Core 1.00 2020-09-01 13:36:15.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C56601 Imaging preprocessing method performed text

Text specifying the details of any imaging preprocessing methods that were performed.

Core 1.00 2017-06-19 10:14:53.0 Functional Magnetic Resonance Imaging (fMRI) Sickle Cell Disease Sickle Cell Disease
C60444 Laboratory procedure alpha beta thalassemia parent result text

The text related to alpha and beta thalassemia results for parents.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C15592 Imaging stimulation device model text

Model of device used for stimulation

Core 3.00 2013-07-16 14:01:43.01 Functional Magnetic Resonance Imaging (fMRI) Sickle Cell Disease Sickle Cell Disease
C60118 Splenic sequestration episode count

Count of splenic sequestration episodes experienced by the subject/participant.

Core 1.00 2021-01-15 09:51:54.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60099 Hydroxyurea dose postpone indicator

Indicator of whether the administration of the hydroxyurea (HU) dose was postponed.

Core 1.00 2021-01-14 14:32:57.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C56609 Imaging acquisition type text

Text describing the type of acquisition used during imaging.

Core 1.00 2017-06-19 10:41:20.0 Functional Magnetic Resonance Imaging (fMRI) Sickle Cell Disease Sickle Cell Disease
C15623 Imaging nonstimulation fixation landmark indicator

Type of fixation landmark

Core 3.00 2013-07-16 14:01:43.01 Functional Magnetic Resonance Imaging (fMRI) Sickle Cell Disease Sickle Cell Disease
C60126 Imaging spleen size measurement

Measurement of the subject/participant's spleen size as determined by imaging.

Core 1.00 2021-01-15 10:45:20.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60107 Transfusion simple quantity text

Text field for reporting the quantity of blood provided to the subject/participant during a simple (non-exchange) transfusion.

Core 1.00 2021-01-14 15:01:08.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C59849 Feel tired despite not do anything past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt tired even when he or she had not done anything

Core 1.00 2019-06-24 10:05:30.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C08023 Imaging abnormal finding text

Text description of the abnormal findings on the imaging study

Core 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C59949 Death related or complication sickle cell disease gene therapy indicator

Indicator of whether the subject/participant's death was related to or a complication of gene therapy for sickle cell disease (SCD).

Core 1.00 2020-08-19 15:15:51.0 Death Form Sickle Cell Disease Sickle Cell Disease
C15642 Imaging statistical parametric mapping contrasts text

Define contrasts in statistical parametric mapping

Core 3.00 2013-07-16 14:01:43.01 Functional Magnetic Resonance Imaging (fMRI) Sickle Cell Disease Sickle Cell Disease
Displaying 126 - 150 of 4766