CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 126 - 150 of 4766
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59203 Equipment make manufacturer urinary albumin assay text

Text field for recording the make and manufacturer of the equipment used for the urinary albumin assay.

Proposed 1.00 2019-03-27 10:55:09.0 PhenX Toolkit: Urinary Microalbumin Sickle Cell Disease Sickle Cell Disease
C59461 Difficult control bowels past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks controlling his or her bowels

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C21499 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest response text

Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C60376 Agent chemotherapy administered total dose

The total dose of chemotherapy agent.

Supplemental 1.00 2021-04-01 02:09:18.0 Conditioning Sickle Cell Disease Sickle Cell Disease
C20717 Patient-Reported Outcome Measurement Information System (PROMIS) - Perception other people intentional cause participant anger past week scale

The scale which represents how often the participant felt that people were trying to anger him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger Sickle Cell Disease Sickle Cell Disease
C58628 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable join friends because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant's health kept him or her from doing what his or her friends wanted to do, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C59822 Lift carry groceries health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to lift or carry groceries

Supplemental 1.00 2019-06-21 13:04:45.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56330 NIH Toolbox Cognitive - Dimensional change card sort age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:36:24.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C55778 Imaging inter peri ictal next headache start duration

The duration of time until the start of the subject's next inter-ictal or peri-ictal headache.

Supplemental 1.00 2017-05-31 12:23:34.0 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C59339 Special therapy due health condition indicate code

Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition

Proposed 1.00 2019-04-01 12:38:12.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C60255 Cardiac MRI left anterior descending artery basal anterior segment rest status

Status at rest of the basal anterior segment of the subject/participant's left anterior descending artery (LAD), assessed by cardiac MRI.

Exploratory 1.00 2021-03-02 16:16:42.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59181 Lung volume measurement

Measurement of the patient's lung volume

Proposed 1.00 2019-03-26 13:52:13.0 PhenX Toolkit: Lung Function - Lung Volume Sickle Cell Disease Sickle Cell Disease
C56280 NIH Toolbox Cognitive - Cognition crystallized composite age adjusted scale score

The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:38:05.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56408 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning raw score

The raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Proposed 1.00 2017-06-12 11:23:35.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C60120 Splenic sequestration episode date

Date of the subject/participant's splenic sequestration episode.

Core 1.00 2021-01-15 09:57:38.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60344 Kidney size right side ultrasound measurement value

Value of the measurement of the size of the right kidney as determined by ultrasound.

Exploratory 1.00 2021-03-15 15:31:10.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C20690 Quality of Life - Worthlessness assessment past week scale

The scale which represents how often the participant felt worthless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C59782 Get in out bed difficulty scale

Scale of the difficulty the subject/participant has in getting in and out of bed

Supplemental 1.00 2019-06-21 10:31:47.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56284 NIH Toolbox Cognitive - Cognition fluid composite computed score

The computed score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental - Highly Recommended 1.00 2017-06-09 09:45:14.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59977 Immunoglobulin M not tested status

Status indicating that the subject/participant's immunoglobulin M (IgM) was not tested.

Supplemental 1.00 2020-09-01 13:50:15.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C59124 Oligospermia grade

Grade of oligospermia (reduced sperm)

Supplemental 1.00 2019-01-17 07:23:04.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C60215 Imaging MRI cardiac indicator

Indicator of whether cardiac MRI (Magnetic Resonance Imaging) was performed on the subject/participant.

Core 1.00 2021-02-26 13:56:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C21485 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest item number

Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Processing Speed Index Subtest of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Sickle Cell Disease Sickle Cell Disease
C56277 NIH Toolbox Cognitive - Cognition crystallized composite raw score

The raw score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:32:22.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56552 PROMIS - Cognitive Function brain was not working as well scale

Scale related to how often an individual has felt it has seemed that his/her brain was not working as well as usual in the past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
Displaying 126 - 150 of 4766