CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60630 Liver biopsy serum transferrin saturation percent value

Value of the percentage of serum transferrin saturation detemined by laboratory anaylsis of liver biopsy sample.

Core 1.00 2021-04-29 15:01:38.0 Iron Overload Sickle Cell Disease Sickle Cell Disease
C60315 Echocardiogram inferior vena cava diameter measurement

Measurement in millimeters of the diameter of the inferior vena cava (IVC), assessed by echocardiogram.

Core 1.00 2021-03-04 15:05:34.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60195 Medical history for sickle cell condition muscle bone joint other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for muscle/bone/joint conditions.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C59235 Pain intensity average past 7 day scale

Scale of the subject/participant's average pain intensity over the past 7 days

Core 1.00 2019-03-27 15:01:10.0 PROMIS Numeric Rating Scale v. 1.0 - Pain Intensity - 1a Sickle Cell Disease Sickle Cell Disease
C60604 Fertility preservation oocyte ovarian tissue embryo continue preserve current cost text

Text for reporting the U.S. dollar value and payment frequency of the current cost of the continued preservation of oocytes, ovarian tissue, and/or embryos as part of the subject/participant's fertility preservation.

Core 1.00 2021-04-29 13:15:58.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C12902 Echocardiogram left ventricle end systolic volume index value

Calculated from end systolic volume over body surface area - left ventricle

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60203 Medical history for sickle cell condition infection other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for infection.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60493 Bone marrow mononuclear cell positive for integrating viral vector percent value

Value of the percentage of bone marrow mononuclear cells (BMMC) positive for the integrating viral vector.

Core 1.00 2021-04-22 13:33:03.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60135 Erythropoietin measurement

Measurement of the subject/participant's erythropoietin (EPO) level.

Core 1.00 2021-01-15 13:25:23.0 Chronic Anemia Sickle Cell Disease Sickle Cell Disease
C59913 Amount mental energy have past 7 day average scale

Scale of the amount of mental energy the subject/participant had on average over the past 7 days

Core 1.00 2019-06-26 09:55:43.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56517 PROMIS - Pain Interference hard to plan social activities unsure pain scale

Scale related to how often it was hard to plan social activities because an individual didn't know if he/she would be in pain in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60231 Cardiac MRI left ventricle end-diastolic volume measurement

Measurement of the subject/participant's left ventricle end-diastolic volume (LVEDV) in milliliters, assessed by cardiac MRI

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59873 Difficult organize thought when work due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant found it difficult to organize his or her thoughts while working, including work at home, due to his or her fatigue

Core 1.00 2019-06-24 14:09:39.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C01012 Physical exam body system result type

Assessment result of each body system examined

Core 3.00 2013-07-25 08:54:08.2 Physical Exam Sickle Cell Disease Sickle Cell Disease
C60524 Gene editing blood CD3 plus lineage on target indel count

Count of gene-editing on-target indels in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Core 3.00 2013-07-25 08:54:08.2 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C59921 Feel slow down think due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant felt slowed down in his or her thinking due to his or her fatigue

Core 1.00 2019-06-26 10:14:43.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60239 Cardiac MRI left atrium volume measurement

Measurement in milliliters of the volume of the subject/participant's left atrium, assessed by cardiac MRI.

Core 1.00 2021-03-02 14:41:21.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C58667 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code

Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C59013 Urine albumin creatinine ratio value

Value, in milligrams per gram, of the patient's urine albumin to creatinine ratio.

Core 1.00 2019-01-07 16:31:34.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C59881 Difficult organize thought do thing home due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant found it difficult to organize his or her thoughts while doing things at home due to his or her fatigue

Core 1.00 2019-06-25 09:42:15.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56485 PROMIS - Pain Interference pain interfere ability concentrate scale

Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60582 Growth hormone receive response deficiency ever indicator

Indicator of whether the subject/participant ever received growth hormone in response to a deficiency thereof.

Core 1.00 2021-04-28 14:41:44.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60532 Gene editing on target indel bone marrow mononuclear cell count

Count of on-target indels in gene editing of bone marrow mononuclear cells (BMMC).

Core 1.00 2021-04-23 11:40:19.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60438 Laboratory procedure hemoglobin F result percentage value

The percentage value related to F variant hemoglobin.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 5231