CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58680 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Wish strong suffer end past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant strongly wished for his or her suffering to end, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58673 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel alone because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58681 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeful health past 7 day scale

Scale for the degree of hopefulness the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58674 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think life better if healthy past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58682 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry health past 7 day scale

Scale for the degree of worry the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58675 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry die soon past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58683 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel different others because health past 7 day scale

Scale for the degree to which the subject/participant felt different from others over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58644 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58645 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Loneliness because health past 7 day scale

Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58647 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58648 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58665 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent severity grade

Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C58666 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code

Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C58667 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code

Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C58664 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis last occur time elapse code

Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C58693 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level joints past 7 day scale

Scale over the past 7 days of the subject/participant's pain level in his or her joints, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58694 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level torso past 7 day scale

Scale over the past 7 days of the subject/participant's pain level in his or her torso, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58688 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain free total past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was totally pain free, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58695 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain prevent activity past 7 day day count code

Code for the count of days over the past 7 days that the subject/participant was prevented by pain from engaging in activities, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58689 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode sudden severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had a sudden severe pain episode, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58690 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Cancel plans because pain past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had to cancel plans because of pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 5231