CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60666 Drug product globin chain interest value

The value of the globin chain of interest in genetic therapy.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C60493 Bone marrow mononuclear cell positive for integrating viral vector percent value

Value of the percentage of bone marrow mononuclear cells (BMMC) positive for the integrating viral vector.

Core 1.00 2021-04-22 13:33:03.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59919 Wiped out past 7 day average scale

Scale of how wiped out the subject/participant felt on average over the past 7 days

Core 1.00 2019-06-26 10:09:37.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60135 Erythropoietin measurement

Measurement of the subject/participant's erythropoietin (EPO) level.

Core 1.00 2021-01-15 13:25:23.0 Chronic Anemia Sickle Cell Disease Sickle Cell Disease
C60231 Cardiac MRI left ventricle end-diastolic volume measurement

Measurement of the subject/participant's left ventricle end-diastolic volume (LVEDV) in milliliters, assessed by cardiac MRI

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59879 Feel less alert due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt less alert due to his or her fatigue

Core 1.00 2019-06-25 09:37:49.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58667 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code

Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C01012 Physical exam body system result type

Assessment result of each body system examined

Core 3.00 2013-07-25 08:54:08.2 Physical Exam Sickle Cell Disease Sickle Cell Disease
C56488 PROMIS - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60524 Gene editing blood CD3 plus lineage on target indel count

Count of gene-editing on-target indels in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59927 Less effective work due fatigue past 7 day scale

Scale over the past 7 days of whether the subject/participant was less effective at work, including work at home, due to his or her fatigue

Core 1.00 2019-06-26 10:38:01.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Core 3.00 2013-07-25 08:54:08.2 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60239 Cardiac MRI left atrium volume measurement

Measurement in milliliters of the volume of the subject/participant's left atrium, assessed by cardiac MRI.

Core 1.00 2021-03-02 14:41:21.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59887 Limit at work due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was limited at work, including work at home, due to his or her fatigue

Core 1.00 2019-06-25 10:01:53.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59013 Urine albumin creatinine ratio value

Value, in milligrams per gram, of the patient's urine albumin to creatinine ratio.

Core 1.00 2019-01-07 16:31:34.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C60582 Growth hormone receive response deficiency ever indicator

Indicator of whether the subject/participant ever received growth hormone in response to a deficiency thereof.

Core 1.00 2021-04-28 14:41:44.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60144 Blood sample collect date

Date on which a sample of the subject/participant's blood was collected.

Core 1.00 2021-01-15 16:40:21.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60308 Echocardiogram left atrium volume body surface area index value

Value in milliliters per square meter of the volume of the left atrium (LA), assessed by echocardiogram, divided by the subject/participant's body surface area.

Core 1.00 2021-03-04 13:48:28.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60164 Oxygen saturation 2 percent decrease room air from baseline indicator

Indicator of whether the subject/participants oxygen saturation (SpO2) in room air decreased by 2% percent or more from baseline oximetry measurement.

Core 1.00 2021-02-23 16:32:02.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Core 3.00 2013-08-28 16:08:00.453 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60152 Lab test result clinical significance indicator

Indicator of whether the lab test result is clinically significant.

Core 1.00 2021-01-21 14:11:49.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60316 Echocardiogram right atrium pressure estimate value

Value in millimeters of mercury (mmHg) of the estimated pressure of the right atrium (RAP), assessed by echocardiogram.

Core 1.00 2021-03-04 15:08:51.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60196 Medical history for sickle cell condition heart other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for heart conditions.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60605 Fertility preservation oocyte ovarian tissue embryo not preserve reason

Reason why the subject/participant is no longer continuing to preserve oocytes, ovarian tissue, and/or embryos as part of fertility preservation.

Core 1.00 2021-04-29 13:20:26.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 5231