CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C20825 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale

The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C59163 Seven day fatigue push frequency status

Status indicating the frequency in which fatigue required subject/participant to push themselves to get things done in the past seven days.

Proposed 1.00 2019-01-31 12:03:05.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C56450 PROMIS - Pain Behavior when pain gasp scale

Scale related to the individual feeling as if when he/she was in pain he/she gasped in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C59395 Child stroke problem verbal expression describe text

Text description of the respondent's child's problem with verbal expression as a result of his or her stroke

Proposed 1.00 2019-04-03 10:42:49.0 PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C56312 NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:42:25.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C60570 Hematologic disorder new incidence follow drug product infusion indicator

Indicator of whether there was a new incidence of hematologic disorder following drug product infusion.

Supplemental 1.00 2021-04-23 15:02:28.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C58871 Forced expiratory volume 1 second measurement date

Date on which the FEV1 (forced expiratory volume in 1 second) measurement was taken

Proposed 1.00 2018-12-14 13:47:37.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C59262 Pain interfere social activity past 7 day grade

Grade of interference with social activities due to pain over the past 7 days

Proposed 1.00 2019-03-28 11:19:14.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C59764 Ascend descend 2 step difficulty scale

Scale of the difficulty the subject/participant has in ascending and descending two steps

Supplemental 1.00 2019-06-20 12:28:30.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56581 PROMIS - Meaning and Purpose expect enjoy future life scale

Scale related to an individual expecting to enjoy his/her future life, as part of the PROMIS Meaning and Purpose

Proposed 1.00 2017-06-15 13:57:59.0 PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a Sickle Cell Disease Sickle Cell Disease
C58728 Performance status scale code

Code for the scale used to evaluate the subject/participant's performance status.

Proposed 1.00 2018-12-06 11:18:08.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59130 Match score total calculated recipient to donor HLA text

Text field for recording the recipient-to-donor total calculated match score for HLA (Human Leukocyte Antigen).

Proposed 1.00 2019-01-22 11:42:41.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
C55705 PROMIS - Self Efficacy managing emotions relax deal with worry scale

Scale related to an individual being able to use relaxation to deal with worries, as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C59826 Dance half hour health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to dance for half an hour

Supplemental 1.00 2019-06-21 13:16:04.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56345 NIH Toolbox Cognitive - Picture sequence memory age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Sequence memory Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C60530 Gene editing conversion bone marrow CD34 plus percent value

Value of the percentage of gene editing conversions in bone marrow CD34+ cells.

Supplemental 1.00 2021-04-23 11:35:20.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C58981 Granulocyte colony stimulating factor receive indicate code

Code indicating whether the patient received G-CSF (granulocyte colony stimulating factor).

Proposed 1.00 2019-01-07 11:47:16.0 Hematopoiesis Form - BMTCTN 1507A Sickle Cell Disease Sickle Cell Disease
C59724 Wash dry body difficulty scale

Scale of the difficulty the subject/participant has in washing and drying his or her body

Supplemental 1.00 2019-06-20 10:30:53.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56548 PROMIS - Cognitive Function have to work hard pay attention scale

Scale related to how often an individual has to work really hard to pay attention or he/she would make a mistake in the past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C20744 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C20837 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness hinder task assessment past week scale

The scale which represents how often the participant had a hard time getting things done because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C59225 Fatigue interfere sport exercise past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant had fatigue that interfered with sports or exercise

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59480 Limited work past 4 week scale

Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her work

Proposed 1.00 2019-04-05 12:23:41.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C56339 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 5231