CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 4766
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58668 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C60249 Cardiac MRI right ventricle stroke volume body surface area index value

Value in milliliters per square meter of the stroke volume of the subject/participant's right ventricle (RVSV) (assessed by cardiac MRI), indexed for body surface area (BSA).

Supplemental 1.00 2021-03-02 13:53:40.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C20367 Pittsburgh Sleep Quality Index (PSQI) - Partner report loud snore past month scale

The scale to which the subject's partner reported loud snoring during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI).

Supplemental 1.00 2015-03-11 11:17:32.0 Pittsburgh Sleep Quality Index (PSQI) Sickle Cell Disease Sickle Cell Disease
C60114 Acute splenomegaly diagnosis date

Date on which the subject/participant was diagnosed with acute enlargement of the spleen.

Core 1.00 2021-01-14 16:47:46.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60338 Nephrocheck AKIRISK score

Score on the AKIRISK scale returned for the NephroCheck urine test.

Exploratory 1.00 2021-03-10 13:53:17.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C56294 NIH Toolbox Cognitive - Cognition early childhood composite fully adjusted scale score

The fully adjusted scale score for the Cognition Early Childhood field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:56:45.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56334 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up computed score

The computed score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C54615 Brief Test of Executive Function Second Edition (BRIEF 2) - Organize material total raw scale score

Total score of the raw scale for the organization of materials function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Supplemental 1.00 2017-03-22 09:57:02.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C59971 Transfusion platelet within 7 days test date status

Status indicating that the subject/participant received a transfusion of platelets within 7 days of the pertinent test date.

Supplemental 1.00 2020-09-01 14:15:25.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C19798 Medical history endocrine male indicator

Text of age of breast bud formation detected

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C20785 Quality of Life - Overwhelm worry assessment past week scale

The scale which represents how often the participant's worries overwhelmed him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Supplemental - Highly Recommended 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C58637 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stiffness prevent arise bed past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was unable to arise from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C60095 Platelet count unit of measure

Unit of measure for the count of platelets.

Core 1.00 2021-01-14 13:12:42.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C56566 PROMIS - Life Satisfation satisfy with life scale

Scale related to how satisfied an individual is with his/her life in the past 4 weeks, as part of the PROMIS Life Satisfaction

Proposed 1.00 2017-06-15 12:58:13.0 PROMIS Pediatric Item Bank v1.0 - Life Satisfaction-Short Form 4a Sickle Cell Disease Sickle Cell Disease
C56286 NIH Toolbox Cognitive - Cognition fluid composite age adjusted scale score

The age adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:47:17.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C57979 Laboratory procedure aspartate aminotransferase value

Value of aspartate aminotransferase (AST).

Proposed 1.00 2018-01-22 13:29:51.0 PhenX Toolkit: Aspartate Aminotransferase level Sickle Cell Disease Sickle Cell Disease
C21484 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C59679 Ability run errand other people satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to run errands for other people

Proposed 1.00 2019-06-19 11:57:03.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59735 Put on take off socks difficulty scale

Scale of the difficulty the subject/participant has in putting on and taking off his or her socks

Supplemental 1.00 2019-06-20 11:10:28.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59015 Forced expiratory volume 1 second percent predicted value

Value of the measured FEV1 (forced expiratory volume 1 second) expressed as a percentage of the predicted FEV1 value.

Proposed 1.00 2019-01-08 11:44:35.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C59829 Take care personal need health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to take care of his or her personal needs, such as grooming or eating

Supplemental 1.00 2019-06-21 13:24:02.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56335 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59452 Difficult participate group conversation past week scale

Scale for the difficulty over the past week that the subject/participant has had participating in group conversations

Proposed 1.00 2019-04-04 14:50:26.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C58741 Hyperbilirubinemia reason hyperhemolysis post transfusion hemoglobin drop indicate code

Code indicating whether the subject/participant's hyperbilirubinemia is a result of hyperhemolysis or of a severe drop in hemoglobin following blood transfusion.

Proposed 1.00 2018-12-06 12:16:18.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59142 Protocol deviation violation DSMB report date

Year indicating when the protocol deviation or violation was reported to the Data Safety Monitoring Board (DSMB)

Proposed 1.00 2019-01-28 17:51:37.0 Protocol Deviation/Violation Review Form (PDR) - BMTCTN 15070 Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 4766